|
|
Post by al on Apr 19, 2015 0:09:32 GMT -5
Read item C
Emphysema is called COPD under the umbrella term. Most people with Emphysema have COPD by definition .
My understanding of Emphysema is that it is Terminal , leading to death ; This opens the door to the
"Right to try " laws now in many states. (U.S.A.) These laws will take off 10-15 years of trials for new drugs or even treatments with stem cells. Many people die waiting.
I applied this to stem cells and Gene therapy and this looks like we qualify.
Full Definition of DRUG MERRIAUM WEBSTER
Right to try , Stem cells, or Genes ??
A : a substance used as a medication or in the preparation of medication
c according to the Food, Drug, and Cosmetic Act (1) : a substance recognized in an official pharmacopoeia or formulary (2) : a substance intended for use in the diagnosis, cure, mitigation, treatment, or prevention of disease (3) : a substance other than food intended to affect the structure or function of the body (4) : a substance intended for use as a component of a medicine but not a device or a component, part, or accessory of a device
Most of the people on this forum have Emphysema ! , You can call it COPD but the medical condition is Emphysema.
Look up both and you will see !
|
|
|
|
Post by David on Apr 19, 2015 18:41:40 GMT -5
Al, thanks for posting.
I never heard of this 'Right to Try'. It makes sense though. I am going to die with this disease so I should have the right to try anything I want to. It's my life.
I was told in 1983 I had emphysema and that is what it is to me.
I am going to see if I can find out more about this "Right to Try'.
Some of the medicine is out of my price range. It burns me up sometimes because I can't try it because I can't afford it.
|
|
|
|
Post by David on Apr 19, 2015 19:38:03 GMT -5
Here is a link to a website about stem cells. I am not saying it is a good site or a bad site. I will look it over.
Everything is worth taking a look at and then form an opinion. It seems appropriate to put the link in this thread.
I have always been interested in stem cell growth and would certainly like to try it if I wasn't so poor.
A closer look at stem cells
www.closerlookatstemcells.org/
International Society for Stem Cell Research
Skokie, IL 60077, USA
|
|
|
|
Post by David on Apr 19, 2015 20:21:54 GMT -5
Al, I see the Right to Try bill passed in the House a few days ago in Florida.
So now I guess it has to go to the Senate and then the Governor.
TALLAHASSEE, Fla. (Apr.  , 2015) – A bill that would nullify in practice some Food and Drug Administration (FDA) rules that prevent terminally ill patients from accessing treatments passed unanimously through the Florida state House today.
Introduced by Rep. Ray Pilon (R-Sarasota) and nine co-sponsors, House Bill 269 (H269) gives terminally ill patients access to medicines that have not been given final approval for use by the FDA. It passed the state House unanimously with a 113-0 vote on April .
Now that H269 has passed through the state House successfully, the state Senate must concur with their decision before the bill can be put onto the Governor’s desk.
goo.gl/0GMfiA
|
|
|
|
Post by jim on Apr 20, 2015 6:05:49 GMT -5
Thank you Al for sharing this and thank you David for your comments. I don't know the laws concerning this in Australia, but I think there comes a time, when all else has failed, that one should have a right to try anything, even it has not been fully tested and approved, in these case one has really got nothing to lose.
|
|
, 2015) – A bill that would nullify in practice some Food and Drug Administration (FDA) rules that prevent terminally ill patients from accessing treatments passed unanimously through the Florida state House today.
