This thread is for Kens Lung Surgery : Please show you support !
I received a call from Stanford Medical Center this afternoon. They advised I should receive a call in the next week to set an appointment to evaluate me for Lung Volume Reduction Surgery (LVRS). I have been keeping this whole thing a secret until now. I’m not sure why I’m happy about lung surgery. More relieved would be a better way of putting.
This all started when my local pulmonologist told me there was no other medical treatment for me other than surgery. I went home, called the National Jewish Health Center in Denver for an evaluation. I got on a plane and flew back to Denver (1000 miles) for 10 days of testing of my breathing condition. I had trouble breathing in Denver (I’m used to sea level).
Thank you for your support Wendy. You are correct when you speak of testing and how much is involved in this process. Yesterday I received a call from Stanford Thoracic Scheduling Dept.…. Monday they will call and tell me if I am a candidate for their LVRS program. Talk about stress…this means so much to me. I won’t stop trying, or quit…. I want to pick that basketball up and shoot some hoops. I can only hope they phone me with good news. I have no regrets about my journey thus far. And I again thank everyone for your support.
Today is Monday and I do hope you hear from them for the scheduling. is the testing done near your home? that helps, if so.....keeping all my fingers crossed for you and sending prayers and hugs :-[ can't wait for you to play hoops again!!!!! life is good.....if you can't play bb you can toss it back and forth to the kids
I have received telephone calls this week requesting additional test results and/or questions about my condition. This morning I received a call from the National Jewish Health Center in Denver. The pulmonologist who was over the testing and evaluation said he gave Stanford his referral for me to be seen by the thoracic surgeon. In addition, he will send a formal letter to them regarding this and I should hear from Stanford in the next week. If I don't, he asks that I contact him for further assistance. Now I could fib and say this doesn't matter to me....but it does. You guys know or understand what I'm facing and why I am fighting so hard. Thank you all for your support.
Another hurtle,or milestone, in my journey has been met (well sort of). . I was on my way to pick up my son from High School when I received a call from the Scheduling Dept. for the Thoracic Surgeon wanting to set up an appointment time for me. I can see him next week or the week after. Everyone there that I’ve spoken to has been so helpful. When I asked she said the appt. would be about possible LVRS. I wanted to yell "I've made it". I felt like I'd finished a year long race. The ball is in my court now to decide when I'd like the appt.
I thank each and every one of you for your support. I can’t thank you enough.
Yesterday, during the appointment with the thoracic surgeon I was told that I was not a candidate for LVRS. He explained his belief was based on his findings after reviewing my medical records. He described the specific problems that they found. He said I am might be a good candidate for a transplant. I learned a great deal about my condition that I was never told.
Thank you all so much for your support.
I’m a strong person (I’m not just trying to convince myself ). I’m going to dribble that basketball and shoot some hoops surgery or not!!!