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Post by susanny on Dec 10, 2009 0:27:26 GMT -5
Here's another interesting article. I heard of one person who says they are going for tests to have it performed in AZ. I am assuming this means they are starting trials in the US. When I get any more info I'll pass it on. www.uptakemedical.com/news.php |
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Post by zar on Dec 10, 2009 4:45:55 GMT -5
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Post by susanny on Dec 11, 2009 2:05:02 GMT -5
Zar comes through again!!! Kudos to you, sir!
This is just about the easiest way out of our plight there could be, outside of a magic wand that could be waved over our chests and heal us. Or maybe an inhaler that would seek out the worst of the damage and seal it off. Who's wishing now.
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Post by Blossom/Jackie W. on Dec 11, 2009 7:47:27 GMT -5
I was pretty sure we'd just rece4ntly talked about this.... sure enough.....
"" Patients who responded to the treatment demonstrated an average improvement in FEV1 greater than the clinically meaningful threshold of 12%. Additionally, the average improvement in quality of life as measured by the St. Georges Respiratory Questionnaire was more than double the 4 point clinically meaningful improvement standard. There were no deaths and the safety profile continues to be acceptable."
What IS interesting though Sue is if in fact you know of someone who's having it done we sure would love to know the outcome!
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Post by susanny on Dec 11, 2009 11:03:44 GMT -5
It was on a forum that I verrry rarely go to but still get notifications if something new gets posted and looks interesting. You can flag it if it gets replies and this person seems like he/she will be keeping us updated. But I think I'll let them know that we are watching and waiting to hear. He/she hasn't gone for testing yet, so...it'll probably be a while.
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Post by zar on Dec 11, 2009 19:56:23 GMT -5
Susanny, No pat on the back for me this time,as I posted about this in November.
I have concerned about this, if they are not going to use the Chartis System or something simular, which I have also posted about,how will they reverse it?.
When using the Chartis System they will beable to check if it will work or not.
There is a race on,to see who can be first on the market
As we are worth 1 billion a year to them.
The trouble with COPD,its not realy life threatning like heart attack.
They have problems with the stents,but they are doing
1 million in the US per year alone.
How long did it take the FDA to pass them because of the so called safty factor, what a joke.
Whats happen to Resprimat the 21st centery inhaler in Europe.
I have been using it for 3 years now and still alive,and I was not one of the first.
Well I hope not, but my money is on Europe bring out this system first.
If it is then whats good for the goose should be good for the gander.
We can now sign to end our lives and no one else can be held responsiable for it.
Then they should allow us to sign a form,so we can go into trails and we wont sue them or anybody else.
To put 10,20,or even 100 people into trails,for 5 or 10 years,how many people die every year from COPD.
What has been done in the last 20 years for COPD,a few inhaler wich most are mix and match and call them something new.
Sorry, but I have to pop my cork sometimes.
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Post by susanny on Dec 12, 2009 2:18:47 GMT -5
I hear you, zar. It gets so frustrating and our hands are tied. Just like a lot of things in life that we can't control. But this is our health and that makes it harder to understand and stay positive, sometimes.
Ok to pop that cork, but next time do it with some bubbly or other suitable beverage. You'll get the giggles when you finished instead of raised blood pressure.
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Post by John on Dec 13, 2009 23:40:49 GMT -5
Thanks Susan NY & Zar
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Post by 1AD1LNN on Dec 21, 2009 14:08:02 GMT -5
Hi
I'm new to this site and I'm possibly having a one way valve to my right upper lung end of next March so I would be interested in hearing from anyone who has had this procedure carried out.
My Consultant feels that it would help my SOB by reducing the upper lobe and giving the rest of my lungs a little more space. He said that the vale could be removed if needs be.
I have to say that he rather sprung this option on me as I didn't realise that this was available in the UK. Next month I see him so I must have a load of questions to ask him!!!
In 2008 I was accepted for LVRS (surgical) but didn't go ahead.
Would love to hear from any of you who have had the non invasive LVRS.
Ele UK
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Post by susanny on Dec 22, 2009 0:14:05 GMT -5
Hi, Ele, I haven't had any surgery for my COPD, but would be interested in getting the noninvasive type performed if, and when, it becomes available here in the US where I am. Was there a reason why you decided against the surgical LVRS?
Personally, I am a chicken. I wonder how I'll be when I become much worse physically. And I don't think I have all that much longer to wonder that, either.
Good to hear from you. I'm looking forward to hearing about your questions to the dr. and his answers.
Sue
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Post by Deleted on Dec 23, 2009 8:06:32 GMT -5
Hi Sue
Frankly I was chicken too hence no surgical LVRS. I have kept in touch with one lady who was in the same hospital undergoing LVRS whilst I had the tests. Within a short while she was in a wheelchair and needed a stairlift (frightening as she was great straight after the op).
Other people do well from the surgical side but, if anything, I would like to try the non invasive (reversible) valves first. Even so I am still very nervous!!!
I will post when I have seen my Consultant in January. The procedure is new to this hospital too I believe.
Ele
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Post by Blossom/Jackie W. on Dec 23, 2009 11:44:51 GMT -5
I'm soooooooo looking forward to your report Ele and I know others are as well!
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