5/20/2011

[bobbioh]

Well the ride to the Hospital went better then expected, And that was a big stress worrying about finding it.
I had a dloc test, Blood gasses taken, and a 6 min. walk.
Then I was taken for weight, bp, o2 readings with and without o2. Finally I was in a room. The Transplant coordinator came in and we went over my meds again.
A bit later the coordinator and the Dr returned. They were both very nice and comforting.
We discussed the pros and cons of TX. And I was told I can not have a LVRS my lungs are to far gone.
Then we discussed if it were time to get a TX that yes I'm eligible,But that it may still be a bit early.
So I have to go back to Plumo Rehab, Lose ten lbs, and start getting some of the tests out of the way.we are going to take it slow over the next three months and see how the rehab and weight loss goes. Along with starting the other tests. So that's my story so far. And I'm happy with it like I said one day at a time. What will be will be. Bobbi

[Blossom/Jackie W.]

Well; you certainly cut to the chase with them . Good for you Bobbi! It almost sounds like you actually had some preliminary testing done? Or was he suggesting "caveats" as in... if this and if that etc.... oops; I just reread your post regarding additional tests. Any idea what kind of tests?

O.K.; so.... we've gotta work on the weight, and exercise more...... we can do this! Right?

How's Don feeling about all this or is he still in a limbo/numb; kinda trying to "digest" the info state. What about you?

I'm really surprised that with your FEV 1 and your history the past 18 moinths or so that they'd say .... "too early" I know of others who started out with higher numbers than yours... God.... how bad do they want it to be?

[susanny]

Well at least you got the destination question out of the way...next time you'll not have to even think about that part. Sorry you aren't eligible for the LVRS, kinda thought that was how you'd really like to have started. But, like you said, what will be will be. What is your FEV1, anyway? Sounds like you really liked the dr's, that's the best part. I'm glad they are understanding. As for the weight, I'll bet the rehab will go a long way towards that goal. You must be doing very well already with how you've been dieting as 10 lbs isn't really that much. Good job! Are you lucky enough to have a rehab nearby, or will you have to travel to where you went yesterday to go for it? How far was that, anyway?

I can only imagine how my husband will feel when we get to this point. He is very worried and doesn't seem to handle things well now. I hope that Don is stronger than Mert. Do you think he will be going to all of your dr's appts with you so that he hears everything first hand?

Anyway, so happy for you. Hope you don't have to wait forever, but hope you do ok in the meantime, too. No exacerbations, just maybe even some improvement what with the rehab.

Big hug for you. Round one, done...

[susanny]

PS, what is a 'dloc' test?

[bobbioh]

DLOC test is to test the gasses in your lungs I believe. My FV1 is 19%. I t6hink his thinking is that after being so ill the last 18 months that Rehab may work real well. The first set of tests are really routine, Colonoscomy, Pap, Mamogram. to start. They will scheadul others over the 3 months. The TX place is a hour 45 min away. Th4e Rehab is 45 Min away. Dons not saying to much hes just going with the flow. And IHe will go to all Tx apts if he is able to get off work. Bobbi

[John]

I hope the best for you bobbi .Y our fev1 pecent # is getting low!

[aero63]

Bobbi

Well, it seems it went smoothly yesterday. No wonder you were tired. Alot to absorb and think about. I think not only because you were sick, but also, it goes by LAS.

What is important is that you are comfortable with what the doctors are saying. I think the rehab, if available to you is something they all want done, it wasn't available beforehand for me.

I am excited for you and words on here just don't express that feeling as good as a hug...so hugs lady.