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Post by jarca on Sept 9, 2016 16:04:57 GMT -5
Although my 02 supplier was wonderful at showing me all the sizes of tanks & carriers that I could choose to use; as my 02 needs have changed I find that I refer back to these links quite often. The links are for the information only, I have never used the companies that are shown, so I cannot recommend a company; just the info about portable tanks; Here is a link that shows how long a tank should last; (with continuous flow or with a "pulse Regulator")---- www.phc-online.com/O2-tank-duration_a/151.htmHere is a link to the size of tanks available; www.tri-medinc.com/page12.htm this picture shows the tanks with the"M" sizes but lower down it tells letter sizes (for instance in my fanny pack I use the "M9" or "C" size. .... In my purse, I use the "M6" or "B" size (B will also work in fanny pack) My company also provides me a continuous flow regulator for my big E-tank that I have for emergency power outages as I need "continuous flow" when sleeping. they have several "pulse regulators" that I can chose from also. Here is ONE link about optional regulators to use if you have tanks (once again, there are many brands available & My 02 supplier keeps several types of regulators that I can chose from; www.phc-online.com/Oxygen_Cylinder_Regulator_s/20449.htmI did try the "smart dose" reglator that "adjusts the LPM according to your needs" & I liked it, however in the dirt & watering on my ATV i kind of destroyed a couple of them---although I may try one again this winter because our frigid weather is hard on the other kinds of pulse regulators. I posted in another forum about the choices I have to "carry" my tanks with, but i'm re-posting it here just so all the choices go together. www.tri-medinc.com/page10.htmIf I have to wear 02, I do feel blessed to live in a day & age that has so many options for me. This is just information on tanks; maybe someone who uses a Portable Oxygen Concentrator "POC " can furnish information about those. There was a time I thought of changing to POC, but I got confused with information about it because most of the info I could find was from companies trying to sell their product. Someone said that the #'s on POC isn't LPM, but just a number. That kind of scared me. Does anyone know about this? I also don't have a choice of Liquid Oxygen, so maybe someone can post information about that? I Liquid might be a great option for me if they get it in my area! Question; I have to change my LPM according to what I am doing, I find that my portable 02 is easier to just reach down & change the flow amount. I have a harder time at home with my home concentrator remembering to turn up the flow when I get up to do things. I wish that they would figure out a way to adjust that with a remote control or something. I knew one person that used a thing like this with his home 02; softhose.com/valvedet.htm he would set his 02 to 5LPM & close off if just sitting around & open up if up doing things. However, I like things that are more regulated that I know how much 02 i'm actually getting so I never tried this. If anyone has ways to adjust home 02 I'd love to hear them!!!! i'm no "pro" on 02, just sharing some things that my supplier has provided me & hoping to hear from others about things they have tried that worked well or didn't work well. goodnews_zps81635ad9
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Post by gerald on Sept 9, 2016 21:41:09 GMT -5
Jarca, I use a POC, Inogen One G2. I use 5 setting for walking, working etc, It goes up to 6. At a setting 5 it will last 4.5 hours, at setting 2 it lasts about 8 hours. So if I am travelling I carry a spare charged battery, but it also comes with a charger to plug in a car. I usually use a over the shoulder strap for carrying, but I also have a backpack for it to keep my arms free for working. It comes with a cart as well. With the long use battery it weighs around 9 lbs.
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Post by lavishgail on Sept 9, 2016 22:08:36 GMT -5
Jarca, they need to come to my home and update me on all the new stuff! Bc I need to know about this. Thank you so much for putting this all up. Very good I'm very happy you did! I'm not going to be shy ANY MORE!!!
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Post by jarca on Sept 10, 2016 20:22:06 GMT -5
good for you gail!!! I use the same 02 supplier that you said you were using, so they should have everything available that I showed was available to me! If they say they don't have it---(they have told me that with my fanny pack when i needed a new one in the past)---tell them to order you one! If they can supply it to me, they can to you PM me if you want to ask about an individual item. Gerald; thank you for your info also! When I looked into a POC i knew they had the wheels & the shoulder strap, but no one told me there was a "hands free" option of any kind; so your info about the backpack is good news!!! it is a bit heavy though. looking at tanks, that would be like carrying an E-tank!!! question about POC?---1. what happens if it is raining hard? can you go out in the rain without ruining it? 2. is the numbers on it the same as LPM? 3. did you buy it or is it supplied by your 02 company? I once saw a chart that compared quite a few POC models, does anyone happen to know where to find that? (i wish i could find a POC that would work as well as tanks for me---then I wouldn't have to have cases of different size tanks taking up 1 whole corner of my dining area )
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Post by gerald on Sept 10, 2016 21:06:24 GMT -5
Jarca, the POC comes with a big that protects it from the elements. I supposed if it was out in the rain for hours it may gt a bit wet. I have gotten used to the weight so it does not seem that bad. I believe the numbers correspond to the LPM. I purchased my POC as the only thing the medical would cover was the tanks, and they don't like those on Airplanes. You can take a look at 1st Class Medical, they have offices in Florida and Colorada. They also have reconditioned machines at good prices. Here is a bit of a comparison of POC www.portableoxygensolutions.com/portable-oxygen-concentrator-comparison-guide/One item I found that has been invaluable was the extra charger for the car. One long trips you can keep the POC completely charged for whenever you stop. Also if you lose electricity, you can charge it in the car.
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Post by jarca on Sept 11, 2016 22:12:07 GMT -5
Yes, I would think having the car charger would be the way to go. I don't fly so I drive & the POC would be nice if i go spend a few days at my son's. My supplier offers a POC instead of tanks, I will have to ask which one they provide & then can compare it to the chart; thank you for finding that also! (i'm horrible at doing searches; i seem to get 'sidetracked', so I admire people like you that can find such good info! TY!
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Post by skate4life on Sept 12, 2016 9:49:50 GMT -5
Jarca - Please go back to Gerald's first posting under "Comparison of Portable Oxygen Concentrators" in this forum topic: philns.proboards.com/thread/13185/comparison-portable-oxygen-concentrators. He gives a link for the Pulmonary Paper. It will not only provide you with the whole magazine (superb but only is mailed every other month to USA people/$25 yr.) but the main researcher Ryan does an excellent job of explaining various things you need to know about POCs. Each Spring (the new 2016 on is out now) he gives updates on various models and also a great chart of all the POCs, not just the 'top - marketed' ones. What caught my eye about all those that just posted here is that you need to understand the a number setting on any POC is NOT the liters per minute of oxygen!! A setting of 5 on a machine from one company, not only is it not LPM, but is not the same as a 5 on a machine from a different company. This is a common misconception many people have. But to get the best POC for you, it is an important issue. You need to review and understand that there are two types of flow; "Minute volume POC" maximum oxygen flow per minute (say 2 lpm) and usually based on breathes per minute. If you start breathing faster, each breath will have less oxygen but maximum per minutes is limited to no more than the 2 lpm. There is another type "Fixed pulse POC" will deliver the same amount of oxygen per breath no matter how fast you are breathing. As a subscriber, I will see today if I can get the link for the new issue and will post it here.
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Post by skate4life on Sept 12, 2016 9:51:17 GMT -5
Sorry, don't know how I got the 'heart' in my post - it should read 'based on breathes.....
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Post by skate4life on Sept 12, 2016 9:52:01 GMT -5
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Post by jarca on Sept 12, 2016 20:06:36 GMT -5
Skate4; Thank you for all the information. I used to belong to a board for PF people, but when they changed their format a year or so ago I quit that board (kink of like my old COPD board just did that brought me here ) They talked a lot about POC's and that is where I 1st heard that the numbers on POC units were just numbers & not LPM! Thank you for furnishing that info again. That Magazine looks fantastic!!!! I will have to figure out how to budget the $25.00 in to subscribe to that! (AARP wants me to renew, but this magazine looks like it may be a better investment than AARP this year ) That link you put in is just 1 month issue? It sure does cover a lot (i'm impressed!!! and really appreciate the link to actually see all that is covered----and it looks like it has articles about different lung issues besides COPD!!! superb!) I may sound ignorant, but is it an online paper or is it a magazine that can be mailed? or is there a choice? (i like hand held magazines/books better than online as i can 'highlight' things in a regular magazine.) ty again! PS. all of the emoticoms have 'codes' that if you type certain things the emoticom shows up --- it seems that the heart is set off by a number or whatever you typed ( it happened to Ozboy once also)---- usually things like w-e-lc0me & h-e-l-lo come up when the word is typed--the heart is using some number i guess.
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Post by David on Sept 12, 2016 22:08:23 GMT -5
will appear if you type the number sixteen.
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Post by skate4life on Sept 13, 2016 13:24:52 GMT -5
Jarca - yes, you can subscribe for a 'in your hands' magazine. I also have the online version - I think it comes because I subscribe to the paper magazine. It is the only mag that includes some other lung issues, particularly pulmonary fibrosis. The link I gave is the most current issue (July/Aug 2016.) Mark Mangus is the RT that has a column (he also appears on EFFORTS and Noah Greenspan's fb.) I hope you don't have to give up AARP for Pul Paper...think what you can give up for a month (coffees, cookies, etc. I only wish they could mail to our Canadian friends..... David - thanks for the number infor/heart symbol. I'll write out the number in the future. I hope POC chart and information articles will help those using POCs. Bye bye.
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Post by gerald on Sept 13, 2016 17:20:12 GMT -5
I ran across this link today. It contains a bunch of videos on various Oxygen Concentrators, also how they work, etc etc. Also some pointers on travel with POC, international travel etc. wroth a quick look resources.copdstore.com/videos
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Post by lavishgail on Sept 21, 2016 17:02:59 GMT -5
It's Funny But If Emotions Show Up For Me Idk? I use my phone and never see any? So if you're seeing them let me know? Because I never put any up. I don't have any on my phone..except little smiles.
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Post by ozboy on Oct 14, 2016 5:11:13 GMT -5
This info is mainly for Australia but a lot of info is pretty relevant everywhere.... lungfoundation.com.au/wp-content/uploads/2014/02/LFA-A5-Home-Oxygen-book-2014.pdfThe 12 things every home oxygen user should know 1. Oxygen therapy can help. Some people with lung diseases do not get enough oxygen into their blood. Low levels of blood oxygen mean that vital organs are being deprived of oxygen and this can cause damage over time. Blood tests are used to confirm if this is the case. Home oxygen therapy can help those with confirmed low blood oxygen by ensuring enough oxygen gets to vital organs. In some cases, home oxygen therapy can also make everyday life easier and more enjoyable. 2. Regular medical reviews are vital. It is important to have your oxygen prescription checked by a respiratory specialist at least once a year. Or, if you feel your condition has changed, make an appointment to see your doctor earlier. Do not adjust your oxygen flow rate on your own. 3. Oxygen does not always relieve breathlessness. There are many reasons why people have trouble breathing. Home oxygen therapy may relieve shortness of breath for some people, but for many it does not. Sometimes you need a combination of therapies to help relieve breathlessness. Ask your doctor, respiratory nurse or physiotherapist to fully explain the benefits you can expect from oxygen. 4. Oxygen is not addictive. Home oxygen therapy is not addictive and it will not weaken your lungs. You will get maximum benefit by using oxygen for the amount of time prescribed by your doctor. 5. There is a range of oxygen equipment available. There are two main types of oxygen equipment used in Australia. The most common is the oxygen concentrator which filters nitrogen out of the air to deliver almost pure oxygen. Gas cylinders filled with oxygen are also widely used and come in a range of different sizes. The smaller cylinders are light enough to take with you when leaving the house and often go by the name portable oxygen cylinders . 6. Some oxygen equipment is funded. Many home oxygen users will qualify for government funded equipment. However, qualifying rules are different in every state. If you need extra equipment, you can purchase or hire it direct from an oxygen supplier. Ask your doctor or a member of your healthcare team for help in working out the equipment that is best for you. A series of helpful practical support tools have been developed to support this booklet. They include equipment checklists and can be found online at www.lungfoundation.com.au
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