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Post by lavishgail on Mar 14, 2017 7:18:48 GMT -5
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Post by ozboy on Mar 14, 2017 12:37:02 GMT -5
Yes Gail...I have read it before in the Chronic Pain Support Group and it is indeed a wonderful read.....It was lovely to refresh it once again... I really believe my unrelenting pleuritic hyperinflated lung issues are more debilitating than dealing with SOB...Put them together and some days can be terrible.....Even the Morphine has minimum masking ability.... Attachment Deleted |
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Post by lavishgail on Mar 14, 2017 17:14:29 GMT -5
I'm so sorry Peter. It really sucks to be sick. I've had a hard couple of weeks, the weather is no help. Last night I coughed up a huge mucus plug, and it was bright red! I was scared to death. Then I remembered I had cherry drink mix in my water, oh boy I'm glad I remembered. What a scary thing.
It looked the same way as when they did a biopsy on my lungs, and when it was done in coughed blood for a day or so. Ugh.
Feel better!
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Post by ozboy on Mar 14, 2017 18:53:32 GMT -5
I shared it in our COPD Support Group and even though it appears to address Chronic Pain...The Isolation and Coping are exactly the same for anyone with an ''Invisible'' Chronic Disease....
Everyone loves it and many have shared the story....so thanks once again....
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Post by jarca on Mar 15, 2017 4:08:14 GMT -5
i haven't read it yet, but just by the title it sounds like what i have experienced---I lived for years with chronic pain that no one "see's" & i would get nasty stares when i used my handicapped card to park & couldn't get thru shopping & reaching things on high shelves....but when i got put on O2 people can "see" that now & the difference in how i am treated is amazing & sad for our society.
I have limitations now more from the pain than from my breathing, but people don't understand when i say that unless they have lived it like others of us have.
it's late now, but i shall read tomorrow ---i'm always looking for inspiration & getting thru another day!
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Post by jarca on Mar 15, 2017 4:10:38 GMT -5
ps. gail that is scary as hell & i have made the same mistake & luckily realized i had eaten or drank something red----so happy for you that it wasn't blood ((((HUG))))
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Post by lavishgail on Mar 15, 2017 16:54:36 GMT -5
Thank you Peter, I'm glad you shared this.
Thank you Jarca. Yes it really scared me my legs went numb.
But I have a lot of pain and I really can relate to the article. I bet you will too Jarca.
I'm so very lonely too. Bc nobody understands. Family members that don't understand, go for a walk get some exercise, why are you always home? What's wrong with you? Blah blah! I've heard it all..my mom gee Gail I'm 81 and I do more than you..I'm glad she does God bless her. Anyway enjoy.
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Post by jarca on Mar 17, 2017 0:04:54 GMT -5
yes gail, pain & grief our society seems to not want to acknowledge sadly.
What I hated the most was when i was first hit with pain throughout my whole body in 2012 (already disabled for all the discs in my back & neck) but this was pain everywhere---
i was made feel like it was "all in my head" or like i was some "drug seeker"--- thank god I finally found my PCP who tries to understand & finally found meds that I can at least "function" again.
When anyone says they are in pain, my heart goes truly goes out to them as i do understand how it is.
thankyou
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Post by jarca on Mar 17, 2017 0:27:54 GMT -5
wow! others do feel this way. good read!
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Post by ozboy on Mar 27, 2017 14:12:41 GMT -5
This virtually sums up me and why i find it hard to deal with both pain and the COPD together... Attachment Deleted |
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Post by lavishgail on Mar 30, 2017 20:15:40 GMT -5
Oh Peter such the truth! When I feel tired I go to bed and then I'm wide awake! Ugh.
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Post by lavishgail on Mar 30, 2017 20:17:05 GMT -5
This is me 😨😨😨😨😨😨😨 just when I lay down after all my meds!  |
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