Please tell me if I'm doing this all wrong. Howdy everyone. My name is Wendy. I have COPD along with Alpha 1 Deficiency which I just found out about 2 years ago.Ive gone down hill fast. Oxygen 24/7..unable to walk much distance. I was a social butterfly working full time 6 kids...to this. Not working..rarely get out. But I have decided to name my oxygen tank. Has anyone else done this.?
Hi Wendy! Welcome to the board! as gerald said; I call my tank a lot of things, but most aren't fit to let anyone hear.
I don't have alpha-1, but my 1st 5 years I went from needing 2LPM (when active) to 6LPM.
My lung specialist said that when i get sick is when my lungs deteriorate the most (which no matter what i get, seems to settle in my lungs).
So after a horrible illness in 2015 that i thought was 'the end' for me I started staying away from public places in the winter. (I went from 2-3LPM to 4-6LPM in just that year-- more than double in a year! )
I noticed years ago that when the kids went back to school in the fall that is when they seemed to get sick & bring home illnesses. This year the same flu went around that hit me in 2015! My PCP warned me that the flu vaccine didn't cover that virus & it scared the heck out of me!! I stocked up my food supply & stayed home (as much as humanly possible) for 3 months during the worse of it this winter! (in utah we have a internet site that posts what diseases are going around the most that is updated each week so i can keep an eye on what diseases are going around)
I'm 63 & don't have kids at home, so it is easier for me to stay away from being exposed to virus than you, but may i suggest you talk to your doctor how you might be able to slow the progression some?
So nice to have you join the board & I hope you join us at the fence to get to know you better.
Post by lavishgail on Aug 15, 2018 23:04:11 GMT -5
Like everyone else, I've named my tank every name in the book! Haha. I'm a lot like Jerca, but I don't need 02 24/7 I have emphysema and Lupus pneumonitis so I'm lung sick when lupus strikes , it goes to my lungs and heart to where as I end up in the hospital.
Been in hospital 5 times this year.
Its very nice to meet you. Come visit one up from here and have a cuppa coffee, or tea, David puts the coffee and tea out everyday for us to talk and hang out.
Welcome to this Mad Hatter's Tea Party. We're quite a mix and this disease comes hiding under many different hats. We all seem to wear a different hat and yet we are all connected. Lots of info and many years of experience. I'm 63 and was diagnosed 27 years ago with Stage III emphysema and I've been on O2 for going on 12 years now. My flow rates are pretty high at this point.
Anyway......I used to go for walks with my portables in a jogging stroller and whenever asked, I used to say I was taking the ladies out for a stroll. Seemed to make a lot of people chuckle which made them a little more comfortable around the oxygen.