Post by lavishgail on Jan 29, 2020 15:38:23 GMT -5
I have Fibrosis disease with Emphysema. A very rare smoking disease. And deadly.
I wouldn't go reading about it. Bottom line like many of us are facing is death. Just like a prison sentence.
I still have not heard at what point I'm at? Like 4 stages, but I have a feeling of where I'm at . murse didn't call me back nor did the doctor. When they first told me what I have, I giggled like a little girl and said ok! I didn't even ask one question? I was numb.
Later my brother reminded me about a little over a year ago they told me they thought I had that!! I went into Denial "Not a river in Egypt" oh well. Have a blessed day!
Oh forgot to tell you y it's rare? because to have Fibrosis and emphysema At the same time and being a woman is rare! 😧😷
Gail - still thinking and 🙏 for you. Is there a support group for people with lung problems near you? I attend one at a nearby hospital. And a local senior center has one aimed at people with fibrosis lung disease. These groups are so helpful...sometimes I talk, sometimes I just listen. But everyone is nice and listen without judging. Sometimes hearing other’s experiences dealing with the same problem is very beneficial. You know you’re not alone. Plus it takes a lot of the pressure off family members...who aren’t as “talkative”. 😉 Just an idea that might be helpful at some point. The group I belong to also offers some fun events too. 😘