Hi, my name is Karen and I have newly been diagnosed with COPD, now Asthma as well. Gotten all those feeling described especially about thinking I am going to die, or at least, the end is near. Still waiting further tests.
Post by Blossom/Jackie W. on Jul 29, 2008 17:17:52 GMT -5
Scary isn't it ? when you're first diagnosed. Most of us have been there and NOT a good place to be psychologically speaking.
I take it you've had a Spirometry or PFT? You also have asthma. I don't know how severe either of your conditions are but let me tell you this.....
I think you have awhile to go.
Nowadays folks are living a LOT longer than they should (or anyone ever thought they could for that matter) with COPD. Are they exceptions? I don't think so. They've educated themselves and in due course you will become more comfortable with where YOU are; what you CAN do and what you WILL do!
It's not all DOOM and GLOOM.
Many of the folks here who are regulars, or visitors will tell you the same thing.
You're in good company here at the forum;
Meanwhile I'd like to suggest something to you; there's a few letters written FOR newly diagnosed COPDer's from "veteran" COPDer's. It might help you right now.... you might be pleasantly surprised...
Karen, Dont be afraid there is so many thing you can do these days, education about Copd and what i can do to help myself is the biggest thing I've learned...I was DX in 92, And the Doctor told me nothing would help me but a lung transplant....I was so afraid that day, just started boo hooing right there ...After that day i started learning everything I could about it and what I could do. I'm still up, keep my grandkids sometimes, My Hubby and I still go to the beach, , i just don't wear the bikini..Take care and come back and talk to us..
Karen; Not knowing what we are dealing with is sometimes worse than living with it. So many people are under the impression that their new diagnosis is much worse than it is to live with.
Try, the best you can, to just reserve your judgment of what your life will be until you get more information about your own diagnosis. Then you can share with us and we can give you actual information as to how we live with it.
We are all different and so we need to know more about your COPD. Glad you have signed up here. Lots of help.
Hi Karen..You are waiting for test results. When you get them, come back and talk to us about them. We can better guide you at that time. I was dx'd officially in 2005. The thing you need to guard against is exacberations. That's anything to can make your COPD worse. Lung infections, pneumonia, etc. Did you quit smoking? That's the number one thing to sloooow this disease down. Exercise, eat well and keep a cool head. You'll do just fine. Come back and tell us your test results, please. Pat
Hi Karen! Glad you made it here,sorry you had to. Someone wiser than me said just the other day that when diagnosed we are given a life sentence not a death sentence. While this disease alters our lives considerably at times we ARE still alive and many of us are living not just surviving. When I got my Dx (diagnosis...hang around and you will become fluent in "COPDese" ) I basically sat down and prepared to die.I wasn't QUITE the compliant patient."EXCERCISE?!and just how the #$@%%$@ am I supposed to excercise? Go skipping with my !$%% HOSE??" Eventually though against my better judgement I went to a rehab class.But only to get out of the house.(When I got my Dx I came home from the hospital on oxygen and "retired".) Under the gentle graces of Attilla the physiotherapist I did some of their stupid excercises.And haven't looked back since. My lung function is lower now than when I first was tested in 2001, but I'm almost as active as I was in my "former life" (pre Dx) At a slower rate perhaps and with a lot more planning but with a greater appreciation for life than I ever had. LOTS better than rotting on the couch like I was. Stick around Karen! Get to know us. Get to know your disease..in this case, knowledge really IS power! Hugs and prayers to you Karen! Brian
My husband age 55 was recently diagnosed with COPD, he is on oxygen 4L at night time but at day time his doctor said he cld lower it down between 3-3.5. His med. certificate showed unable to work for 15 weeks so he left his job and is at home now. He went back for check up last week and told his doctors he is feeling a lot better. Can COPD patients still work full time or it depends on who is hiring them? He love his job as a mechanic but has to accept the fact he cld no longer work as one anymore. Thank you.