all.....Ive been checking in regularly and reading everyones posts. It seems a lovely community you have going here. So Ill just tell alittle about myself. Ive just been recently diagnosed with COPD although i have been having problems leading up to my diagnosis for the past year.I have had one spirometry test and will go this monday for a full PFT (i think).
Alot of this seems familliar(because ive been reading up)AND foreign to me as its all relatively new but i do have a couple questions. Perhaps if i write in here a little of what it said on my doctors noteafter my spirometry someone might be able to help. I realize i should ask my doc alot of questions but with everything happening all at once and the doc's appt. so spaced out i seem to not think of questions until after ive left the office. Soooooooo this is what was written on my report......."the FEV1 is severly impaired at 41% predicted at best, or1.19 litres. and the FEV1-FVC ratio is severely reduced at 40%. There was no change following bronchodilator thereapy.
Ok..so i know its not a good thing...but i read about stage 1,2,or3 of COPD or mild moderate and severe...just wondering whereabouts i stand with all this. Thanks in advance :)Stephanie
Post by Blossom/Jackie W. on Mar 12, 2009 18:25:03 GMT -5
Hi Stephanie! ....heck of a way to meet; but....we're glad you're here!
You've have some honest Q's ....however; I can honestly say; don't get too wrapped up in the numbers too too much.... they're that.... numbers. It's how you feel and right now you're possibly feeling a bit overwhelmed and rightly so!
Please bear with us and we'll get your Q's moved or copied over to the COPD area by tomorrow. (I'm headed for bed myself) We've great moderators and some very terrific, diversified members here.......
Till the morning.... and; welcome to your 2nd family!
Hi Stephanie: I too, am newly diagnosed with copd although I haven't got the readings yet. I am new to the message board as well, but I have been reading the messages posted and thought this would be a good way to talk to other people who are going through the same thing. I am having a difficult time dealing with this diagnosis especially since I seem to have more bad days instead of good. I have a list of questions that I am taking in to my dr. and am researching the different medications, etc. Perhaps with some new meds and some breathing exercises, you will feel better. I know my dr said my copd was mild to moderate but she also said that readings can vary. I have asked to be seen by a respirologist as well-advise I read on a website that indicated a pulmonary function test should be first step and then see respirologist. My thoughts are with you and wish you the best
Hi Stephanie, Welcome to the group, but sorry to meet this way. I am sure that you are feeling confused with all of this but it will sort itself out and make sense to you soon. There are wonderful people here that can help you with information and fellowship. I am glad you found this site so soon in your journey, Take Care Mary
Welcome... We have all been there, And I Know how you feel. I dont know if you ever get over the fear thing it pretty much comes and goes. But you do get used to it and the good days out number the bad. Im at 30% and I babysit my grandson. And do all my own house work. If you eat right, Dont smoke, exercise, Take your meds as persciped. Avoid illness. You will get along fine. Good Luck. And Welcome. Bobbi
Hi Stephanie; I'm John! I'm @ Mod - server stage from what they say @ fev1 of 29%.I don't feel that bad most days! I take my meds, exercise, eat right & don't get to upset about anything. I do just about every thing a 60 year old can do & a lot more than many 40 year olds @ 60 I've already out lived many people who didn't live long enough to get copd! I've got many good things out of copd like semi yearly physicals, I quit smoking 3 years & do feel much better than I did when I was dxed 3 years ago. I have many a fine friend here copd land ! Glad to see you join in. Maybe Kista will join in also
Welcome, sorry we had to meet because of COPD, but you have found the best, nicest caring group of people anyplace on the net. I have survived lung cancer, had my right lung removed in 1984, now copd. Not sure what stage i am at, sure it is severe as my recent cat-scan said my E has worsened. Whenever i am down or scared i find the friendship here, from people who understand. Even though were ill, we are living with copd, not dying of it. Like Bobbi i keep very active we have 4 grandaughters and two of them live here in Tampa they are 3 1/2 yrs old. Boy oh boy do they keep me hopping! Again welcome to the Family! hope to see ya around often!