Post by Blossom/Jackie W. on Jun 16, 2009 11:39:46 GMT -5
Toni.... Before you get down in the dumps or hyper or anything like that.......... She told you the truth!
I've had many CT's in the past couple of years. I don't ever like hearing the word "nodule" when I see or read it on my own BUT; I do know that they can even "be there", "remain" there .... unchanged. It can be the nature of our disease/
Standard proceedure is to wait the 3 months and repeat. Even if they are still there; they may very well be "unchanged"
I know you're nervous, I know you might be down, I know you might be feeling somewhat disappointed..... Try not to be. I'm not the only one here that'll tell you/confirm what you've been told. A number of folks here have had the same situation occur more than once. Nodules can be just that.... nodules.
toni I have had so many things show up on Cat scans etc that I have learned not to get too upset....heck the last one they even did a pet scan on it and it was gone then.....try not to worry and try not to wonder too much the how's/why's/what's...sometimes it's just the way it is, no reason.........I know easier said than done but try to work on it........enjoy your summer
heya toni, not to worry, everyone's right, they've been finding those things in mine since i was first diagnosed 18 years ago, now at tgh they know it's just scar tissue from old infections; standard procedure is to scan every 2-3 months for 1 year and then every 2 years after that, no prob, you didn't come this far with this disease without picking up a couple of scars here and there....it's hard though and it's frightening; try to hold on, have a nice glass of wine or whatever your preference and enjoy today...it's going to be a fabulous sunset here into toronto land...i'll be thinking of you and sending warm thoughts your way
Toni, I could feel your frustration in having to wait longer, and worry. You sound much better this evening. I'm glad all the posts helped you and hope you can get some sleep tonight. It sounds like you probably don't have anything to worry about... but I'll bet you will anyway. I'll keep you in my prayers for a relaxing wait and perfect outcome.
Toni, my heart goes out to you as that waiting is so hard when you have to try and push back any of the thoughts that come with something like that. I do know, I have had them on one scan and none on the next so it can be many things. Think positive, it can be hard but you are a woman of courage and you can do it. That time I hope flies by for you!! Hugs