So, I met with the Transplant nurse first. He said that everything is a go. All my test were good, no red flags. Only one problem is the extra support for after my tx. He called the social worker while I was sitting there and she called him back. He said that she and I needed to try to get things done.
I told him the problem I had been having with pain since the catherization and he check that area. He didn't see anything unusual, like bulging.
Next, he said that the bone density showed that my bones were very weak and that I needed supplements such as calcium and vitamin. I didn't ask how many units or whatever and know nothing about vitamins and need to call about that again, duh. I had the vitamins they make me sick.
I also did the six minute walk today, which had been rescheduled. I did well on it. Next, my range of motion and strenth was assessed. I didn't expect a glorious report on this. I have a couple of herniated discs that do cause me problems still. So, in my right arm there is weakness and when I turn my head, in addition to pain. However, I did expect this. However, that is no biggy in tx world I guess because my doctor did not mention it.
Next, the tx pulmonologist came in...Dr. Lee. He said I have B blood which is uncommon. This works in my favor. There are currently 40/45 lung tx recipients on the list for O; and there are only 4/5 on the B waiting list. As mentioned before, it works in my favor in some aspects, in that not many in my category are waiting, but not many are donors either.
Next, he said I needed to go to an allergist and keep up with all my shots and exams. Also, he sent me for 3 more blood tests. One is to see which zoster category I am in, since this has some bearing, and he wanted to know. It showed that I was positive for it. I forget how they explain the bearing of shingles on the tx donor and recipient, except that they don't want someone who has not been exposed to be exposed.
He asked how the oxygen was working out. I told him that I don't seem to be getting the same benefit that others speak of. The increased energy, endurance, speed, etc. He said that he didn't know why, but some people just feel no benefit from it. However, I must stay above 90 and use it!!!! He said there is no harm in getting too much oxygen and it does not damage the lungs.
He also examined the site of catherization. He sent me for an ultrasound. The ultrasound showed no bleeding or other nicked veins. I had this done over at the other building after my appt. A doctor came in and said that nerve damage does happen and that it can take up to 3 months to heal from it. He said that sometimes there is no way to avoid nerve damage and that is just the way it is. Hmmm, no mention of this at the time of catherization.
So, after the social worker calls and in the event that I can find more support, I will recieve a letter that I am officially on the list. An estimate is that I would wait approximately 6 mths to 1 yr. However, after I am placed on the list and when, he will be better able to give an estimated wait time.
The only obstacle is getting support and I am working on this. Where is that dang frypan?
Let's just keep hoping.
Thank you all for walking with me. I hope that all of you are here to walk with me again when I must go up another and much harder hill to climb. You have been a source of strength that cannot be explained.
I love you so much, you explain this so easily, and I know how hard this has been, mabey your brother and sister really need a realitly check from you and Grady. Everything seems to be moving along, and I have afeeling it won't be too long, you sure deserve to be breathing eaisly, you have been through so many uphill struggles. I admire you, you have the body of a baby lamb and the heart of a Lion, I am so proud to know you aero. Love your friend Linndie
Post by Blossom/Jackie W. on Mar 5, 2010 7:45:14 GMT -5
Well Antoinette; It sounds like you're "on your way!" I'm confident the extra support person will be found for you very soon. You've really been handling all this so well and like Linndie..... I'm proud of you! And; thank YOU for sharing with us and yeahp..... we'll be here for, and with you, all the way!
Aero, you have been so eloquent with your writting of your experience with this journey. Thank you so much for sharing. I will definetly stay with you, to cheer you on and give you hugs. You are one special person, thank you for being you.
Aero, Thank you so much for the beautiful explanation and journey thru the testing procedure of a transplant. You are such a brave and lovely person and I am truly thrilled to know that we have the same blood type. I am sure someone will come thru and be your support for you following the transplant. Bless You
Another process under your belt.It is quite exciting to hear how quickly things start to roll once it begins. I am happy for you that your tests have all come out good to go. Now for that team of supporters. I don't know about you, but failing health caused me to be out of touch with my friends in the last few years. Could that be what your situation is? I'm wondering if you could contact some old good ones and see if they wouldn't love to have you back in their lives and be willing to help you out. Just a thought. I'm praying that you will find your support soon so you can just 'relax' and wait this out. Stay strong, we're all here for you, and I'm sure each of us wants to be there with you, as well.
Thank you again for sharing this process with us. You must take a voice recorder with you and make notes so as not to forget anything. Or you have terrific recall. The story you are telling is so detailed and compelling.
Hi Aero, I just saw this today and I'm so happy that you qualify for the transplant you want. Thank you for sharing the details of your journey. It will make it easier for those who follow and allow them to know what to expect. I'm hoping the social worker will have suggestions for how to set up a support person. Since most people have to work today, it is hard to find someone who has the time. Perhaps there are retired volunteer workers in your community who would be able and willing to help. Could you check local churches and community organizations staffed with volunteers to see if they have a list of people or recommendations? You will always be in my thoughts and prayers and I'll be there in anyway I can as you make your journey.
Susanny, I always kept only a small gathering of friends close to my heart. Most of my friends are a couple hours away. Those that are not, are younger and working with families or just can't grasp the seriousness of it. I don't take a recorder, but hey, a good idea. I did want to video the operationbut don't think it would be allowed, .
Les, good suggestions. It has been a while since I set foot in a church. I will follow the suggestions.
Hi Aero ; In over the fence I told bobbi that I was headed out to lite a candle for her . I'm also going to lite one for you that your caretaker situation will be solved in short term . Sleep well & I hope you found your frying pan