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Post by Deleted on Mar 17, 2011 11:23:50 GMT -5
Dear people, I asked Helen for this forum adress. My name is Anneloes, age 59. I have three children all living on their own. I live by myself with my dog and cat. I have COPD fase 4 and am on the list for transplantation for 14 months now. Last year I had so many people from Canada sending their best wishes for me when I was very ill in the hospital. And now I read your support messages for our Klaas. We are very touched by your sympathy!! I would also like to tell you that I recovered quite well, even the doctors were surprised about that. Last month I had a longvolume reduction treatment by bronchoscopy; this worked out very well, so I am doing quite well at the moment. Now I will start reading the messages from your forum, to try and catch up what's goin'on with everybody. Again, thank you very much for all your support, it means a lot to us!! Love, Anneloes.
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Post by John on Mar 17, 2011 15:34:09 GMT -5
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Post by helen on Mar 17, 2011 20:28:53 GMT -5
Hi Anneloes!
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Post by maryaz on Mar 17, 2011 21:55:27 GMT -5
anneloes, We are glad that you joined. Welcome and sounds like things are falling together. Any questions, just ask.
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Post by susanny on Mar 17, 2011 23:02:49 GMT -5
Uploaded with ImageShack.usIt is so good to hear from you in person, Anneloes. When I saw your name I thought I recognized it from Helen's link about your surgery. I am so happy that you are doing so well. Do you have the same Pulmonary Function Tests that we have here where your FEV1 is measured? If so, I would like to know what you measured before your surgery and what it is now since you've had it done. Helen says you are doing so well. Do you still think you will apply for transplant? I suppose you will wait and see how things go. I am 57 and live with my husband and 2 cats, Max and Callie. I have 2 grown children, one who lives nearby and the other lives about 4 long hours away. It will be great fun to learn from those of you so far away. Looking forward to our talks, Sue
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Post by Deleted on Mar 18, 2011 4:00:11 GMT -5
Thank you all for the warm welcome!! Sue,so nice you recognized my name from (almost) a year ago from Helen's link! Next week I am going to the hospital again for a check up and then I will ask about the FEV1. They told me before but I always forget about it. However, I did not have surgery but a bronchoscopy and they put in 3 valves in my left lung. It is a new treatment over here, they are trying it out on 30 patients, so I was realy lucky to be one of them. It is great because you only have to stay in the hospital for 3 days. I am still on the transplant list, because, although I feel a lot better at the moment, the illness is still there and they don't know for how long these valves are going to work. It's not that I can do everything now, but I do have some more air and that makes a world of difference for us, I don't have to explain that to you all, I guess!! Thanks Helen for your welcome too!! We have to stop meeting each other on forums! ;)Sue, I'm also looking forward to our talks!! Anneloes.
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Post by goof on Mar 18, 2011 5:57:44 GMT -5
Nice to meet you here Anneloes
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Post by Blossom/Jackie W. on Mar 18, 2011 8:54:07 GMT -5
It's wonderful to have you with us Anneloes, I too remember you from Helen's posts and it sounds like myou're doing much better!
My name's Jackie, aka Blossom, and I look forwarward to getting to know you better.
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Post by Deleted on Mar 18, 2011 17:54:05 GMT -5
Yes Jacky, I remember your name (Blossom) from last years messages! I'm looking forward to get to know you all better!! I am so happy Helen brought us in touch with your forum!!
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