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Post by Blossom/Jackie W. on May 29, 2007 6:29:56 GMT -5
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Post by larrynz on May 29, 2007 18:07:01 GMT -5
Thanks for that Jackie, I have been approached and declined.
One is Tiotropium (spireva) with the respimat delivery, the other is Tiotropium plus oxis.
The problem from my point of view is I have to stop Spireva and Symbicort, then risk getting a placebo. This happened to me once before, an early trial of respimat, I stopped the Symbicort as required then got a placebo, in one month I became rather low and had to withdraw.
I recently had a house call from a nurse about that trial and try and recruit me for the new study, I explained the situation and they understood.
I have been on two other trials since the the first disaster, but not one that requires my giving up Symbicort. There is a strong demand for people willing to be involved.
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Post by Blossom/Jackie W. on May 30, 2007 6:04:14 GMT -5
I'll tell you what Larry; if I had to give up the Symbicort I'd decline as well. I don't mind doing trials or studies but the giving up of meds in the process is a definite no no. The study I'm in right now isn't for meds but rather it's tracking disease progression and studying genes so there's no withholding or changing of them.
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Post by cheryl on May 30, 2007 10:43:03 GMT -5
I was really shocked when I read this. To give someone a placebo who needs their meds. Well, I just don't know what to think about that. I certainly hope they were monitoring you very closely, Larry.  |
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Post by virginia on May 30, 2007 17:20:01 GMT -5
I'm like you Cheryl...Wouldnt give up any med that helped me breath..They should figure out another way.
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