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Post by Deborah on Mar 1, 2014 13:37:27 GMT -5
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Post by jim on Mar 2, 2014 7:19:56 GMT -5
Thanks for sharing Deborah, it is available in Australia, so I'll ask my doc about it next I have need to go and see him. hug4U
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Post by mumsie on Mar 2, 2014 14:08:10 GMT -5
Hi all - I was on Spiriva and perfectly happy with it from diagnosis in early 2009 until last year. Then as more new 'Spiriva equivalent' drugs hit the market here in the UK, my GP asked if i would consider other brands ( i can return to Spiriva if i wish).. First I tried Elkira Genuair - I wasn't keen on this. It 'did the job' when i managed to inhale effectively, but I found that with it's fatter mouthpiece half of the powder never went down the airways - i was left with gritty residue and a bitter aftertaste. After 3 months on that I tried SEEBRI - and i love it. It works for me. The inhaler is new each month so there is no need to wash it - and i find the capsules less fiddly than Spiriva. If i do get any aftertaste then it is far more pleasant than with the other inhalers. I also linke the mouthpiece - it works well for me - and that the inhaler is smaller and neater than the Spiriva one. Of course with so many 'varieties' of COPD, what suits me may not suit everyone - but i definitely prefer Seebri over Spiriva and i never thought i would find myself saying that! Hope my review is of some use, best wishes, mumsie  |
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Post by sandy07 on Mar 3, 2014 10:26:51 GMT -5
Breezhaler would take the place of Symbicort. Tudorza would take the place of Spiriva. I've tried them both . They worked good for a week. Maybe it was something else (allergy) ? that came along but both bothered me by tightening up my lungs. I may try again before the Spring allergies come.
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Post by Deborah on Mar 3, 2014 11:30:09 GMT -5
Thanks everyone. Sandy I'm sorry to hear that nothing worked well for you in the long-acting category. The respirologist replaced my spiriva with this medication (I've never been on symbicort). I agree with Mumsie that I like the inhaler itself much better. It is taking me a while to find an easy way to peel off the foil when my hands are particularly arthritic and I find the second inhale has more powder so I have to be mindful or I can choke for a moment. I am sure the side effects will pass shortly - particularly the sleeplessness - as my body adjusts.
It is so true that what works for one person's particular COPD may not work for others, isn't it?
Thanks again for the shared experiences.
Deborah
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Post by susanny on Mar 3, 2014 11:51:20 GMT -5
I just know that I was switched from Spiriva to Tudorza a few months ago and was VERY pleased with the change. THen when in the hospital last week they didn't have the Tudorza and was put back on Spiriva for the stay. My breathing was not as good and just like before, wasn't able to breathe in deep enough to get into my lungs. Now I am home and back on my Tudorza and my breathing is the best as it's been in ages and ages. I am able to do more for myself and walk farther and stand in position for a long long time. I really love Tudorza.
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Post by stoker55 on Mar 3, 2014 11:59:54 GMT -5
Happy to hear that I am not the only out there banging my head against the wall trying to find an inhaler that works. Thanks for sharing.
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Post by hugahusky on Mar 10, 2014 5:45:25 GMT -5
I agree with Susanny, the Tudorza is far better than Spiriva. I too can do a lot more without my oxygen now that I am on it. Also, Sandy, it seems as though my sinuses are not bothering nearly as much since using it. It has been a treat to wake up to a "clear" head in the morning.
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Post by Blossom/Jackie W. on Mar 11, 2014 12:54:40 GMT -5
You know.... I can honestly, truthfully say that I wouldn't know if Spiriva was, or wasn't working. When I've been very, very ill and not able to use the Spiriva diskus they're resorted to the two mdi meds that replace Spiriva. Then I go back on... Add to the fact that I started both Symbicort and Spiriva at the same time... I really can't blame Spiriva for anything becasue I don't know what the difference was/is, could/should be.
Tudzora is of interest to me and only from what some of you on the forum have shared and notice the difference between the two....
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Post by judi on Mar 11, 2014 17:50:48 GMT -5
I may have the same reaction to Spiriva as Sandy, to me it seems like it paralyzes my airways or chest muscles. I can't take a deep breath either. Right now I only take it for a day or two when I feel a little congestion, it probably doesn't work as a bronchodilator that way but it does dry up any mucus. My pulmo didn't think Tudoza would be any better but if you all are taking deep breaths on it I may ask to try it.
I struggle with meds too, right now I am taking 80/4.5 Symbicort and I can't even take a full dose of that without having bronchospasms and getting a weird, shortness of breath. It works great when I get the 'Goldilocks' dose that's "just right", it seems like I have to have a certain level and no more or less.
judi
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Post by Fran on May 24, 2014 1:34:51 GMT -5
I was put on Seebri two weeks ago after being on Atrovent and Severent. It worked well for a few days but then I had to start using Ventolin every few hours. I wondered too about whether it is allergies or like the post above, it just stopped working and i get a tightness in my chest if I don't use my Ventilin every few hours, so this doesn't seem to be working.
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Post by susanny on May 24, 2014 22:04:16 GMT -5
Fran, I can't use Ventilin. When my dr gave me some samples it made my throat and lungs feel hoarse and during my last hospital stay a couple of months ago, that's what they gave me for the emergency inhaler and the same thing happened, along with the extreme shortness of breath.. Maybe it was the combination of Ventilin and Spiriva and the lack of Tudorza that caused it all, who knows. Anyways, I've never tried Seebri breeze before so can't comment on that.
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Post by Blossom/Jackie W. on May 26, 2014 10:25:07 GMT -5
This is intersting.... and I'll tell you why. Sandy and a few others have been saying for awhile now that Spiriva seems to "tighten" their chest.
Then Judi said something that really tweeked with me.... She said....... "Right now I only take it for a day or two when I feel a little congestion, it probably doesn't work as a bronchodilator that way but it does dry up any mucus"
Personally I NEED damp mucous to help me bring it up. Lately it's been going the other way. Thicker and drier and harder to expell. Yesterday I neglected (for the 1st time) to take my Spiriva. By afternoon and evening it was much "looser" and "wetter" shall we say.
I have a Resp appt in June. I think I'm going to ask about Tudzora while I'm there.
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Post by ronwtor on May 26, 2014 18:20:32 GMT -5
hi fellow copd there is new in haler called see-bri made bye novartis. if you have a peak flow metertest it3 times a day morning-noon--night youwill see a drop in your breathing with spirva
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Post by ronwtor on May 26, 2014 19:44:13 GMT -5
there is generic vent burns and makes thr. dry my respo put in gar. since using see-bri my fevi %8 persent higher
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Post by ronwtor on May 27, 2014 3:01:22 GMT -5
alot of people need to have there facts before posting see-bri is number one used med.this used to be nu.1 site with phil cab people need to take agood loof at it. iused to enjoy this site iwould check it out every day
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Post by ronwtor on May 27, 2014 5:26:57 GMT -5
true fact tudorza same ing. as spirva
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Post by ronwtor on May 27, 2014 9:17:09 GMT -5
see bri number one seller in europe. all so on powder inhalers you in hale 80% when people use see-bri when you in hale you keep it in 9sec that was done in med. trials
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Post by sandy07 on May 28, 2014 11:11:42 GMT -5
Ron...Tudorza and Spiriva (also Atrovent) don't have the same ingredients but they DO target the same things in the lungs. That's why we use one or the other but not 2 at the same time.
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Post by ronwtor on May 29, 2014 8:59:35 GMT -5
trials was tested 4 months does not last 24hrs. lasts 18hrs/ ihave done10 med trials 8clinical.there are new ones coming on the market where you use 2 waitting fda app iam not a new kid on block
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Post by ronwtor on May 29, 2014 16:27:54 GMT -5
i all so did not ment.any of those meds. 59% of people with copd do not use there meds right acc. to gold standard act
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Post by Mary Lascelles on Apr 27, 2018 11:35:26 GMT -5
I was put on the Seebri inhaler almost a week ago due to being on Tudorza Genuair 400 mcg. I had at times experienced not being able to completely reset the metered dosage which caused me to become stressed. I was initially on Spiriva which I found over time didn’t last the 24 hours for the next dose which left me struggling until the next dose. I’m not exactly sure how this is going to turn out but I’m hoping that it works for me because after this I’m not sure what I’m going to be able to count on for my Emphysema/Asthma.
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Post by skate4life on Apr 27, 2018 16:42:12 GMT -5
Mary - there are many new meds and various combinations that your doctor can try. YOU have to let him know when one is not working and why. Many people have problems with powder based products, some have difficulty with the device itself. Hopefully he can give you samples (all docs get samples from the salespeople - does yours?) to try for a week. I just had to change and doc gave me 'professional samples' of 2 different drugs to try. One I stopped after third day, second one worked so well that I will ask for a Rx.
Don't get discouraged, be proactive for yourself!
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