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Post by gerald on Jul 27, 2016 23:15:00 GMT -5
This affect my emergency medications and may affect others as well. Specifically mentions Avelox, Cipro, Levaquin. ------------------------------------------------------------------------- The U.S. Food and Drug Administration has enhanced warnings of side effects of a group of strong antibiotics used to treat a variety of respiratory and urinary tract infections and limited their use to patients with no alternatives. The antibiotics known as fluoroquinolones include Johnson & Johnson's Levaquin, Bayer's Cipro extended-release tablets and Merck Inc's Avelox. (bit.ly/2a8Xvup) The FDA added a box warning to the antibiotics in July 2008 to inform users about the increased risk of tendinitis in which the tissue connecting muscle to bone becomes inflamed. The box warning was updated on Tuesday to highlight the disabling and potentially permanent side effects of the drugs. The regulator said in May that the side effects of the antibiotics outweighed its benefits. (http://www.fda.gov/Drugs/DrugSafety/ucm500143.htm) (Reporting by Dipika Jain in Bengaluru; Editing by Don Sebastian) www.reuters.com/article/us-fda-antibiotics-idUSKCN1062D9?feedType=nl&feedName=healthNews&utm_source=Sailthru&utm_medium=email&utm_campaign=US%20Health%20Report%202016-07-27&utm_term=US%20Health%20Report
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Post by lavishgail on Jul 27, 2016 23:59:56 GMT -5
This is the medicine they give me when I end up in the hospital!.
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Post by lavishgail on Jul 28, 2016 0:00:33 GMT -5
Sorry Levaquin *
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Post by barb7330 on Jul 28, 2016 5:38:15 GMT -5
Don't let them give it to you anymore Gail...Fluroquinolone drugs are poison. I had been on cipro before as well but this time was absolutely terrible and that's why I'm on prednisone, and could be for life Dr. tells me.
Thanks Gerald for putting this info up....
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Post by John on Jul 28, 2016 6:22:33 GMT -5
Thanks Gerald . My pc put me on Levaquin.Within 1 day I torn a tendon out in my foot and from time to time I still have trouble with it 3 years later . gaah
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Post by jarca on Jul 28, 2016 15:23:40 GMT -5
I was on levequin or Cipro so much in the beginning with my old pcp (primary care physician). It didn't happen to me right away (some people it happens on 1st time), but one time my ankles started aching so i was on bed rest for quite awhile. Luckily my leg tendons are okay. However, I didn't fair so well in my arms. To this day from my shoulder to elbow of both arms are in severe pain & extremely weak. Last winter when I got so sick, my dr asked if he could put me on it along with the injections I was getting. Out of desperation I agreed. The very last day of treatment I started to feel the pain flair up. Dr had me finished the last of it, but it was a scary time for me.
That medicine is poison! (kind of like chemo) and maybe I should not have pushed my luck, but i felt I was facing death & the choice of death or tendon tears I had to make. I have never heard of "Avalox" so thank you for the knowledge. (i do so wish that I wasn't allergic to steroids---it sounds like that would help me so much at the bad times! ---- I take celebrex daily for my anti-inflamatory & 2x a day when sick (which has side effects of it's own)---may not be the greatest, but it is what I can do.) I always wonder if prednisone makes a big difference & how i would feel to be able to take it)
Thanks gerald for the info.
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Post by lavishgail on Jul 28, 2016 22:52:45 GMT -5
I have a very bad ankles too. My Achilles tendons on my right ankle has been swollen for 5 years now, and they're is nothing they can do. I went to a picnic 5 years ago and kept falling down, my foot was not moving right either, it was stiff and like slamming down when I walked. How awful. Oh they just said it would take a long time to go away. You're not kidding, and Myou feet are always numb and tingly. I do the have diabetes. My hands lately have been getting that way to.
I have some alergys to antibiotics, and being that I had sepsis what am I supposed to say? I'm on my own in the hospital?
Hubby this time didn't go. He worked. And bc it was so hot there is told him to stay home. They had me in a room that was extremely small. Ugh.
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Post by lavishgail on Jul 28, 2016 22:53:44 GMT -5
Don't have diabetes **
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Post by sharon on Aug 1, 2016 12:44:44 GMT -5
wow what else do they give, I have been on levequin and have it as emergency antibiotic
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Post by barb7330 on Aug 1, 2016 13:40:14 GMT -5
Well Sharon if I were you I would not take it....I was on cipro and thought I was dying I was in so much pain for 5 weeks and I had taken it before with no problems...Now I'm on prednisone as they say I have polymyalgia rheumatica which I'm sure was caused by the cipro....Drs. won't admit there is anything wrong with these drugs...But the head woman in the FDA and her husband are in deep trouble because of these drugs. There are law suits going on in the States.
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Post by sharon on Aug 1, 2016 14:12:43 GMT -5
Is prednisone an antibiotic ? thought it was just a steroid. What antibiotic is safe to use? amoxicillin?
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Post by barb7330 on Aug 1, 2016 15:18:35 GMT -5
No prednisone is a steroid which is bad too but the only thing that will give relief from polymyalgia...I've cut back to 10 mgs a day from 15 and hopefully Dr. will cut me back some more on the 8th. Dr. told me I could be on it for the rest of my life which didn't make me very happy but because I'm 79 years old I need to have some quality of life. My lung Dr. put me on azithromycin Monday to Friday. Miss Saturday and Sunday....It is an antobiotic and I think lung Dr. is trying to protect me from bugs...I would talk with Dr. and see what he may be able to give you, other then fluroquinolone drugs.
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Post by lavishgail on Aug 2, 2016 4:21:21 GMT -5
Oh gosh Barb! I'm still on steroids, they got me down to 15mg. From 60mg. But the lower I go the worse I feel and the more I eat. . The higher dose im on the less I eat, I'm so backwards! Haha. But im allergic to erythromycin! Oh badly. So I have been on Sulfamethoxazole, in which I was also allergic to sulfers as well, but apparently I outgrown it? Idk? Gail, XOXO
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Post by barb7330 on Aug 2, 2016 10:55:19 GMT -5
The steroids don't make me eat at all. And I haven't gained weight. I was on erythromycin once and got terribly nauseous. Azythromycin doesn't seem to bother me....thank goodness. I'm also allergic to penicillin.
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Post by jarca on Aug 2, 2016 17:46:12 GMT -5
I have many allergies & can't take steroids, erythromycins or tetracyclines, but luckily I can take medications in the "pennicillin" group & it has many to chose from. (Sulpha's I can take also, but my Dr usually uses that for urinary infections) My Dr. uses a few different ones on me depending on how bad my infection has gotten. Cefdiner & Cefuroximine seems to be his favorite lately. From what I've read Cefdiner works especially well on lung infections like bronchitis & pnuemonia. I know there is "controversy" about the use/overuse of antibiotics in america, but even if I start with a virus, my lungs seem to go into a bacterial infection in the blink of an eye. From my understanding that is common for people with lung infections so antibiotics are necessary part of treatment. I found this link about types of antibiotics that is fairly recent information(i hope i do this right); emedicine.medscape.com/article/302460-medicationSharon; you might want to ask your Dr if something on the list might be an alternative for the Levaquin (or cipro)----that medication is scary!
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Post by judi on Aug 2, 2016 21:29:47 GMT -5
I just got a prescription for Cipro today for diverticulitis, I hope I survive. I have taken this class of meds before, the first time I got sore tendons but the copay was so high I crept around carefully and continued taking them and survived. I get neuropathy pain from them and it can end up permanent so am quite fearful of taking them. Jarca what happens to you when you take steroids? I have been having a lot of problems with them, I get increased airway obstruction and bronchospasms but seem to do better on extremely low doses...100mcg Asmanex every other day. I get increased obstruction and mucus and short of breath on pred. I am not taking any right now because they shut down my intestinal motility completely, autonomic neuropathy I think. That is how I got diverticulitis.
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Post by jarca on Aug 4, 2016 16:21:21 GMT -5
Judi= Steroids cause me to go into anaphalatic shock. (i believe that is what all the symptoms put together is called; although with other allergies I get rash & my throat swells shut) 1983= symptoms when given an injection in my knee for "bursitis"; within minutes of getting the injection; 1. I started having severe pain in all my joints & muscles; It felt like my body was on fire. 2. I started sweating profusely, my blood pressure dropped to 60/40 3. I felt like I was suffocating and couldn't get any air then 4. i went into a white fog & passed out. I was in & out of consciousness for the next 6 hours while I was in a hospital room with IV's running into my arm. When I woke up, they kept me for a few more hours to "watch me" & then sent me home For the next week I was in severe pain & pretty much bed ridden; but my brain was the worse part----I felt like my brain didn't work, I had no emotions; the only way i could explain it was that i felt dead inside. (now days I know that is due to some effect on the adrenal glands???) 2012=I am not sure what caused this, but it started with a trip to the dentist where he split my lips open & I got a horrible infection they called "angular colitis". My GP gave me several medications for it, but it continued to get worse. Over the next 6 months I started developing severe pain in all my joints. My feet felt like i was walking on hot coals. It got so I could not walk any distance, just hobble to a car. My blood pressure raise from my normal 110/70 to 200/?(bottom was high also). I had a hard time keeping my 02 above 90% etc. My breathing & pain got so bad my GP asked me if she could put me in the hospital under supervision & administer Steroids to me. She said that steroids had come a long way & the ones in the 80's she said were "dirty" and she felt maybe I wasn't allergic to them. I was desperate & I agreed to going to the hospital & having them. Same thing happened as in 1983; blood pressure dropped, my body was on fire, i couldn't breath etc. ....I ended up in the hospital for a few days due to that and when I was sent home there was the the week of bed & trying to get my body and mind back together. That dr had sent me home with prednisone pills "to taper" off over a few days, but when i took a pill within an hour my body started being in pain, my blood pressure would drop & I would sleep for hours. (i was scared to take the pills & scared not to take the pills & "taper wrong") That was the end of steroids for me. I have had Dr's tell me that a person "can't" be allergic to steroids as we make them in our own body----I stay away from those Dr's! I would like to remind people that this is my experience only. From my understanding steroids help most people breath better & also help pain... sorry for the legnth---i just can't seem to write short stories
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Post by judi on Aug 4, 2016 23:16:48 GMT -5
I have been doing a little research and yes, you can be allergic to steroids, they say its rare but also likely under-reported so it may be more frequent than is known. Link is a brief article but I have seen better ones in the past, maybe on Medscape or a Family Medicine article, I am not sure. They can do a skin patch test to find out. Your reaction is way worse than mine but I do get short of breath. For a long time some of them have given me airway inflammation, if I take them my airways get raw and then heal up when I don't, I got that on Flovent and Qvar but Symbicort and Asmanex don't do it. It is like a contact allergy or rash on your skin only in my airways. Boo Hiss Cipro. I took one pill and got alarming chest heaviness/squeezing and kidney pain. They changed me to Leviquin which is the same but I think I have taken that before so hope I survive. I can't start it until tomorrow because I have to walk to my pulmo appointment early morning and am afraid to take it before then because of the tendon issues. www.ncbi.nlm.nih.gov/pubmed/11456363
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Post by barb7330 on Aug 5, 2016 5:58:23 GMT -5
Oh Judi....Don't take either one. That's how my problems started last January with diverticulitis. Dr. put me on cipro and flagyl. He said I had taken them before so should be ok. Ten day supply that I quit taking at about 7 or 8 as I was getting sicker by the day. About 4 days after the pain started. I couldn't lift my arms above my waist and headache was terrible and every bone in my body was actually sore to touch. Went to Dr. and she said it wouldn't be the cipro to take tylenol for arthritis. Five weeks later still no better. Didn't care if I lived or died. Back to Drs. She did different blood work and called me 2 days later and told me I have polymyalgia rheumatica which is just another form of arthritis. I have been on prednisone ever since as it's the only med that will give relief. Down to 10 mg a day from 15 and hopefully Dr. will decrease it more next Wednesday when I see her. She told me I could be on it for life....Now my lung Dr. was made aware of this and he has me on azythromycin Monday to Friday just so he can keep the bugs away. So far so good.
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Post by judi on Aug 5, 2016 17:22:43 GMT -5
Wow Barb,that is rough. I know how it is when your doctors will not believe what is happening. I think I got neuropathy from taking Norvasc and eating a ton of grapefruit which can interfere with its metabolism and after I went off of it the neuropathy has been triggered by higher doses of COPD meds. I still don't know if any of the doctors believe it but I have been on low doses for a few years and have almost no problems unless I take more or something else that brings it on. Nothing triggers it besides medication.
Are you sure part of your problem was not the flagyl? I was given that with Levaquin and it was terrible, I got severe neuropathy symptoms as soon as I started it and refused to take any more. I don't see anything about any of them causing permanent arthritic conditions but they can cause a permanent neuropathy. They do cause temporary arthrialgias though so as far as I am concerned your condition could have been triggered by them. They test those meds alone and then people take them with a bunch of other drugs and different things can happen and it seems to me to be a rare doctor who will acknowledge that. I get neuropathy from floroquinolones but so far it goes away when I stop. I did start the Levaquin because I am infected and need it, I got some muscle pain and neuropathy but so far not too bad. I am going to keep an eye on it though.
I hope you find some relief, I hear you about the quality of life issue. I was miserable for around 4 years and it is very discouraging.
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Post by jarca on Aug 5, 2016 20:16:50 GMT -5
Gosh, judi; if you started feeling bad with your 1st cipro pill it seems that switching to levequin wouldn't be you best change. Is there some reason your Dr. wouldn't give you a different kind of antibiotic?
As for steroids, I have never done an inhaler with a steroid, due to my allergies. Do you use a spacer & wash your mouth out good (and gargle) with salt water after each dose of your inhaler with steroid? I know many people have a problem getting "thrush" from steroid inhalers & they avoid it by rinsing good after every dose---and using a spacer is supposed to make a big difference. If you are seeing your pulmo in the morning (?) perhaps it would be good to ask him about both the inhaler & the antibiotic that might be better for you & less chance of bad reaction. my thoughts & prayers are with you. please be careful ((((HUG))))
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Post by judi on Aug 7, 2016 20:59:23 GMT -5
You were right Jarca, I could not take the Levaquin either. I don't understand why as I had it a couple of years ago but this time I got so short of breath I wanted to intubate myself. I am hoping I got enough and may be about over the infection anyway.
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Post by jarca on Aug 8, 2016 17:31:45 GMT -5
judi, I'm sorry you had the reaction, but glad you knew the effects & were able to stop the medication before any really bad reaction happened. In case you didn't get all of the infection, please stay vigilant & call your dr for a safer antibiotic before it gets bad. With all the medications out there that can help us, it seems like a dr can find a suitable one everybody that doesn't cause these horrible side effects. (yes, i know all meds have side effects, but not that scary of ones) my prayers are with you that you will continue to get better.
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