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Post by John on Apr 15, 2017 7:18:41 GMT -5
This thread is for Kens Lung Surgery : Please show you support ! From Ken; I received a call from Stanford Medical Center this afternoon. They advised I should receive a call in the next week to set an appointment to evaluate me for Lung Volume Reduction Surgery (LVRS). I have been keeping this whole thing a secret until now. I’m not sure why I’m happy about lung surgery. More relieved would be a better way of putting. This all started when my local pulmonologist told me there was no other medical treatment for me other than surgery. I went home, called the National Jewish Health Center in Denver for an evaluation. I got on a plane and flew back to Denver (1000 miles) for 10 days of testing of my breathing condition. I had trouble breathing in Denver (I’m used to sea level).  |
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Post by John on Apr 15, 2017 11:33:28 GMT -5
Ken We are with you in thoughts and spirit  |
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Post by lavishgail on Apr 15, 2017 11:59:46 GMT -5
Oh Ken I'm thinking of you and sending in prayers. God bless you!
I'm happy if you're happy! 😘🤗❤❤
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Post by David on Apr 15, 2017 13:46:30 GMT -5
I will be praying for you Ken. I hope everything goes well.
I wanted lung reduction surgery but the doctor told me I wasn't a candidate for that. He said the emphysema was through out all my lungs so surgery was out.
Only thing I could do is get a lung transplant but I turned that down.
I hear that lung reduction can help a person breathe better. Good Luck.
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Post by gerald on Apr 15, 2017 16:41:11 GMT -5
Ken, good luck with the Evaluation.
I hope everything goes in your favor! My prayers are with you.
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Post by joany on Apr 15, 2017 18:53:06 GMT -5
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Post by ozboy on Apr 15, 2017 22:33:57 GMT -5
I wish you all the best during his period...It can be quite a frustrating and challenging time but just give it your best shot...If you need any info then maybe I can pass it on... Attachment Deleted |
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Post by ken on Apr 15, 2017 22:36:06 GMT -5
Thank you all for your support. I'll post what happens and any news.
Ken
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Post by barb7330 on Apr 16, 2017 10:42:06 GMT -5
 Ken...Hope all goes well.
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Post by ken on Apr 17, 2017 17:00:04 GMT -5
Thank you for your support Barb.
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Post by wendyco on Apr 21, 2017 15:41:40 GMT -5
Ken, I'm with you the whole way!!!! whether you qualify or not the journey will be exhausting and exciting all at the same time.....whewhooo get ready to enjoy the testing!!!!!!!!  |
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Post by ken on Apr 22, 2017 14:55:11 GMT -5
Thank you for your support Wendy. You are correct when you speak of testing and how much is involved in this process. Yesterday I received a call from Stanford Thoracic Scheduling Dept.…. Monday they will call and tell me if I am a candidate for their LVRS program. Talk about stress…this means so much to me. I won’t stop trying, or quit…. I want to pick that basketball up and shoot some hoops. I can only hope they phone me with good news. I have no regrets about my journey thus far. And I again thank everyone for your support.
Ken
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Post by wendyco on Apr 24, 2017 13:03:12 GMT -5
Today is Monday and I do hope you hear from them for the scheduling. is the testing done near your home? that helps, if so.....keeping all my fingers crossed for you and sending prayers and hugs  can't wait for you to play hoops again!!!!! life is good.....if you can't play bb you can toss it back and forth to the kids |
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Post by ken on Apr 27, 2017 14:29:27 GMT -5
Update (of sorts):
I have received telephone calls this week requesting additional test results and/or questions about my condition. This morning I received a call from the National Jewish Health Center in Denver. The pulmonologist who was over the testing and evaluation said he gave Stanford his referral for me to be seen by the thoracic surgeon. In addition, he will send a formal letter to them regarding this and I should hear from Stanford in the next week. If I don't, he asks that I contact him for further assistance. Now I could fib and say this doesn't matter to me....but it does. You guys know or understand what I'm facing and why I am fighting so hard. Thank you all for your support. |
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Post by lavishgail on Apr 27, 2017 20:50:09 GMT -5
Oh Ken, I hope everything turns out for the best! My thoughts are with you always! My prayers are for you.
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Post by gerald on Apr 27, 2017 22:34:28 GMT -5
Hang in there Ken, it is getting closer.
My prayers are with you. We are all with you.
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Post by jade on Apr 28, 2017 5:03:40 GMT -5
Look to the future with enthusiasm and positivity, this intervention will help you get back your wellbeing, have no worries dear friend, this is the first step to have a good health.Jade
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Post by wendyco on Apr 28, 2017 8:55:13 GMT -5
whewhooooooo let the testing begin!!!!!
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Post by barry on Apr 28, 2017 10:44:07 GMT -5
Ken you are in our thoughts Barry & Marsha |
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Post by ken on May 3, 2017 9:44:18 GMT -5
Another hurtle,or milestone, in my journey has been met (well sort of). . I was on my way to pick up my son from High School when I received a call from the Scheduling Dept. for the Thoracic Surgeon wanting to set up an appointment time for me. I can see him next week or the week after. Everyone there that I’ve spoken to has been so helpful. When I asked she said the appt. would be about possible LVRS. I wanted to yell "I've made it". I felt like I'd finished a year long race. The ball is in my court now to decide when I'd like the appt.
I thank each and every one of you for your support. I can’t thank you enough.
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Post by gerald on May 3, 2017 11:17:24 GMT -5
Great news Ken!!!!
I Look forward to hearing of your progress.
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Post by wendyco on May 3, 2017 18:32:53 GMT -5
whewhoooooo
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Post by ken on May 3, 2017 21:39:17 GMT -5
Update:
Appointment with Thoracic Surgeon Next Tuesday May 9th at 8:30 am. I'll report back.
Ken
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Post by jade on May 7, 2017 7:08:57 GMT -5
Ken ,all will go well.Take care Jade
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Post by John on May 8, 2017 6:28:21 GMT -5
Thinking of you for the 9th
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Post by higgs on May 9, 2017 7:32:50 GMT -5
Our prayers are with you.
Higgs
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Post by ken on May 10, 2017 12:30:45 GMT -5
Yesterday, during the appointment with the thoracic surgeon I was told that I was not a candidate for LVRS. He explained his belief was based on his findings after reviewing my medical records. He described the specific problems that they found. He said I am might be a good candidate for a transplant. I learned a great deal about my condition that I was never told.
Thank you all so much for your support.
I’m a strong person (I’m not just trying to convince myself  ). I’m going to dribble that basketball and shoot some hoops surgery or not!!!
Ken
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Post by wendyco on May 10, 2017 12:43:03 GMT -5
Ken you are strong and this is just a minor block in your adventures......you will shoot that basket and nothing but net!!!!!  |
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Post by David on May 11, 2017 21:51:26 GMT -5
Sorry you can't get the surgery. I was told the same thing. They said I might can get a lung transplant but I have turned it down. I am just ready to go when my time comes.
If you go for the transplant then I wish you well and hope everything turns out good.
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Post by gerald on May 12, 2017 17:10:01 GMT -5
Ken, sorry to hear about your result for the LVRS,
However, it is great that the doctor reviewed the potential for a transplant.
Having the option is a major gain.
Take care, you are going in the right direction!
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Ken...Hope all goes well.
). I’m going to dribble that basketball and shoot some hoops surgery or not!!! 