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Post by John on Jun 20, 2017 6:57:19 GMT -5
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Post by mary57 on Jun 20, 2017 9:55:51 GMT -5
WOW, that would be awesome John, I hope you are a candidate for it.
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Post by jade on Jun 20, 2017 16:33:09 GMT -5
John,sincere wishes that whatever medical professionals decide to do with you will benefit you.
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Post by ozboy on Jun 20, 2017 16:52:57 GMT -5
Hi John.....So they have made a lot of changes to this procedure?....I had read about it a while back and in 2011 the ''EASE'' trial came up with very disappointing results....I believe that the Endo Bronchial Valves (Also far from successful) and the Nitinol Coils, were the new go for emphysema but not for those like me, who had damage to every lobe..... Interested how you feel about it as there is not much publicity on this anymore, although i have not done any recent research since i got knocked back on the valves...In hindsight it was the best thing ever as the only 3 people i personally know have really gone downhill since the valve op in 2015-  . If one decides to go for any of these procedures, it is better to do during a trial as post it costs a lot of money plus these valves/coils what ever are only temporary n needs to be replaced at intervals or in case of issues... Best of luck with it all mate.....cheers. |
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Post by jim on Jun 20, 2017 21:16:28 GMT -5
I really hope it works for you John.
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Post by lavishgail on Jun 30, 2017 22:46:59 GMT -5
I'm routing for you John, im so happy they have this for you! Prayers..
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Post by John on Jul 1, 2017 7:18:47 GMT -5
Thanks Oz . I like you seem to have wide spread em . I still haven't heard back from My plumo regarding my MRI  Thanks for the support everyone . As of now it's a great big not sure ! |
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Post by jarca on Jul 1, 2017 20:57:30 GMT -5
interesting.
help me understand?
Like Peter, I was interested when the valves & coils came out. From what i saw the coils seemed to have better results than the valves, but both had "problems".
The way i understand it is the coil & valves were inserted to "close off" bad parts of lungs so just the 'good' was left to work.
this looks kind of opposite to the coils & valves tho. ,,, it looks more like it is opening up a 'gate' to let the bad air out?
so for people with 'air trapping' or perhaps like i who have a problem "diffusing" the air from my lungs to my blood stream---this would help open that up to pass the air out???
Am i close, or is this on the same theory as the coil & valves?
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Post by sharon on Jul 7, 2017 14:57:35 GMT -5
Wish you the best John. Praying it helps if you have it done
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Post by dottie on Jul 7, 2017 19:14:02 GMT -5
Good luck John piease keep us updated ,it sounds interesting !
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Post by John on Jul 7, 2017 22:27:38 GMT -5
Hi All . Not going to happen . My Dr says the risk is to high for collapsed lung at my stage . If it's not broke . don't fix it or make things worse kinda thing . Oh well ! Thanks for all the support thankyou You are all are the best ! |
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Post by lavishgail on Jul 8, 2017 10:38:19 GMT -5
John, this means you're lung is collapsed? Oh my goodness.
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Post by lavishgail on Jul 8, 2017 10:39:12 GMT -5
Or does this mean your lung can collapse?
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Post by John on Jul 8, 2017 13:22:35 GMT -5
John, this means you're lung is collapsed? Oh my goodness. Gail No and no my lung isn't collapsed but the procedure could maybe cause it to . |
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Post by lavishgail on Jul 9, 2017 11:43:08 GMT -5
Oh dear, that's not good, I'm glad you're not doing it. Oh goidness.
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Post by jarca on Jul 12, 2017 23:03:59 GMT -5
sorry you aren't eligible for it, but glad you didn't get it & have problems.
as you said ; & glad you had dr smart enough to know not to do it.
prayers are with you
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Thanks for the support everyone . As of now it's a great big not sure ! 
