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Post by jarca on Jul 2, 2017 19:45:23 GMT -5
I just saw a post on another board about the dangers of "fluoroquinolone antibiotics" and it got me thinking how in 2012 i went trough a major whole body pain episode that i've never recovered from to this day & i now live in constant pain.
I thought it had something to do with my COPD exacerbation and I went to specialists, had MRI's, cat scans of almost my whole body. My feet were so bad that I couldn't walk.
I've always thought something set it off, but never put the 2 together.
I have seen many warnings about these antibiotics, and I have no proof this is what caused my body to "give out" on me, but just the other day i saw another warning about these anti-biotics & something 'clicked'.
I remember my old Dr prescribed levaquin & Ciprofoxacin for EVERY bacterial infection (& i got a lot the 1st couple of years i was on 02). I was given these antibiotics for sinus, lung & UTI infections that I had during the years 2010 to 2012; when i changed Dr's.
I'm sure others have seen the warnings about these antibiotics, but in case you haven't, you might want to ask your dr to prescribe something other than these;
Avelox (moxifloxacin), Cipro (ciprofloxacin), Factive (gemifloxacin), Levaquin (levofloxacin), and Ofloxacin= Fluoroquinolone Antibiotics
It says women over 60 are even more likely to have reactions to these antibiotics.
Anyway, i just thought i would bring it up, in case someone doesn't know & understand that this can happen to anyone at any time!
With all the antibiotics out there, you may want talk to your dr to chose something else rather than chance the side effects of these antibiotics.
i'll never know if this is what caused all my pain, but if i had a choice, i wouldn't chose these again 
www.drugwatch.com/cipro-levaquin-avelox/lawsuits/
www.wfmj.com/story/35411536/side-effects-potential-adverse-reactions-associated-with-class-of-antibiotics
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Post by barb7330 on Jul 3, 2017 8:50:20 GMT -5
I know what you mean about these quinolone drugs...Took them over a year ago for diverticulitis...Cipro....quit taking them as every bone and joint in my body ached. Could only lift my arms up waist high. Went to Drs and said I think it was the Cipro and she said no way and the pharmacist said the same thing...Dr. put me on Tylenol arthritis pills...Didn't do a darn thing..After 5 weeks of suffering she sent me for blood work. Called me the next day and told me I have polymyalgia and the only drug that would help is prednisone. Started 15 mg a day and now down to 5 mg...Still have lots of pain but I guess unless I take larger doses of prednisone I will always have pain. I do believe the anti's caused all this pain....
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Post by gerald on Jul 3, 2017 22:11:25 GMT -5
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Post by jarca on Jul 4, 2017 19:18:06 GMT -5
i know i'm not alone; my oldest daughter took Levaquin once & had the reaction in her shoulder, arm & lower back. That was 5 years ago & she goes in for steroid shots every 3 weeks or she can't move to go to work. (i'm allergic to steroids so i don't have that option)
I don't know why I never related that total body pain experience I went thru in 2012 to all the levaquin & cipro until now. I guess because I took it so many times for 2 years that when the pain hit i didn't put the 2 together like i would have if it was the only time i took it.
that is one of the reasons i wanted to bring this up. A person may take it once & get the "side effect" or a person may take it 20 times & the 21st time have the reaction.
My pain didn't come on mildly and get worse; it was suddenly my shoulder down to my elbow i could barely move. Then another day my neck was in excruciating pain..... and so on throughout my body.
My 'finale' was my son was here, we were outside doing things. I came in that evening & commented that my feet hurt bad. I thought if was just from being on them all day & maybe cheap shoes, but by the next morning i literally could not stand on them & had to crawl!
I went to SOOOO many specialist (including pain management), I had x-rays, MRI's, cat scans (cost me a fortune) over months. It seemed like every image of a joint that hurt found something wrong (different things on different images, but why would that suddenly happen or just suddenly cause excruciating pain??? it just didn't make sense, but who could think when in chronic pain, all over, that wouldn't get better over months of testing & seeing dr's?)
When my GP doctor of 17 years told me it was all in my head & i needed to see a psychiatrist (when images showed things wrong) I got away from her & my present PCP didn't use that med as he figured i'd taken it so much that i needed a change from it. ( a year of so ago i got sick & he prescribed it & people warned me not to take it, but i still didn't think "those warnings" applied to me & still hadn't related my chronic pain i live with to that med (i just related the 2 as i said).
Anyway, I'm telling my story because i'd hate anyone to live in this pain if it can be avoided!
Barb, thank you for sharing your experience also.
I am not the type to file a lawsuit, but I sure will warn people as I am now!!! (i don't get why the FDA doesn't remove it from use---or at least it have much stronger warnings IF given as a LAST resort)
IF you are given this med please beware!!!!
If you have sudden pain during or after taking this drug get ahold of your dr!!! although i don't know if there is anything that can be done after the fact!
ps. i am not a medical professional, and i can't 'prove' this is what caused my pain (circumstantial evidence) as with everything, talk to your dr about what is best for you
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