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Post by jim on Jan 28, 2022 22:04:34 GMT -5
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Post by sallybrown on Jan 29, 2022 7:38:08 GMT -5
Thanks, Jim! Thanks, Gail!
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Post by lavishgail on Feb 10, 2022 20:02:18 GMT -5
I have ILD with fibrrosis, one and half lungs filled with fibrosis. It is what it is .
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Post by jade on Feb 12, 2022 16:21:55 GMT -5
Gail 🙏 🍀🥀
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Post by lavishgail on Jun 4, 2022 16:36:51 GMT -5
That was from Covid, I'm better but no matter where I go, even if it's room to room I get out of breath, I feel like I'm being lazy?
I just have such a hard time and no one to talk to about this? I think I'm on like my doctor thinks, I'm on "long Covid" means you still have symptoms up to 2 years after getting it. But oh well. I read all my paperwork, and the doctor that operated on me Typed in Ild with Fibrosis, but my doctor said
Oh that only means you get real sick come fall and we have to watch you close in winter months.
I'm thinking 🤔 again they never really explained it to me, so I looked everything up word by word. No matter how you read it says samething ild w/fibrosis. And if you look that up OMG 😳 don't . It's to scary.
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