Well it hasn't been a great week. First the CT scanner broke and we missed our Physio, the next day it was so crowded we ended up going out in the hallway to do our warm ups. The physio room is very small (our one in Halifax was 3x the size) and we did not have time to finish our routine before they closed at 4PM. Wednesday woke up to a snowstorm, we were supposed to go to a support meeting however, hubby was hacking and coughing and had a very gruff voice. The fun starts now...while we are here the transplant team looks after you for your lungs in the state they are in and if you get sick you must find a family doctor to treat you. We have no family Dr here but do have an appt at Western Hospital to meet one but not until Feb 20th. So it was either a trip to emerg or find a doctor. At home the respirologist we had gave us an action plan with 2 Rx's for anti's but of course its no good here. We did find a clinic about 2 blocks away and had to get a cab to drive us up there. We did see a doctor who really wasn't very familiar with COPD, he kept telling hubby to breath because he couldn't hear the air in his lungs. hmmm?? In the end he asked what kind of anti's we wanted cause he didn;t want to make a mistake. Yikes!! We told him what we wanted and off we went. We did make a call to our transplant co-coordinator to let her know what was going on, but for now we will sit tight and hope all works out, if things don't improve we will have to use emergency but really hoping it doesn't come to that. For now we will not be going to Physio until we are sure that things are clear. We will consider this a mini vacation!! One of the great things that did happen is that as soon as we didn't show up at the hospital for our regular meetings the phone started ringing, other couples making sure we were ok and didn't need anything! Its nice to know you aren't alone.
It's fabulous that you have the immediate support of the other couples around you (not to mention here) and I really hope the anti's work but don't hesitate to use TGHs emerg...they will triage your husband high because he's on the 'list' and you may get a more informed course of action. Seems the guy you saw was a little out to lunch...it's that sort of ignorance that we are trying so hard to change and it riles my dander when I hear of it happening in the medical profession. ARGH!!!! My thoughts are with you guys...send me a personal message if there's anything I can do for you or get to you.