The COPD Foundation

[morningstar]

As you know, research has been very weak in our COPD world - and obviously, without active research, progress at finding better protocols, meds, and progress towards a cure is slow at best. The COPD Foundation has taken the lead - and is stepping out to do something about this. In order to move COPD research forward and help patients identify and evaluate research opportunities, the COPD Foundation is starting a research registry.
The COPD Foundation research registry is a confidential database of individuals diagnosed with Chronic Obstructive Pulmonary Disease (COPD), as well as immediate family members who would consider participating in research. The COPD Foundation is developing the registry in conjunction with the National Jewish Medical & Research Center in Denver, Colorado. The National Jewish Medical & Research Center will host the location of the database in order to ensure the strictest confidentiality of patient information. All information in the database is strictly confidential. No researchers, nor any other third party personnel will have access to personal information (such as names, addresses) without YOUR prior knowledge and consent.

For more details, including how the database will function, as well as an outline of the first major study, visit: www.COPDFoundation.org/registry

PRINTED WITH CONCENT OF CG OF COPD INTERNATIONAL

[Blossom/Jackie W.]

As a footnote to Rose's post, and for those of us here who are Canadian, I had checked with CG at CI and yes Canadians can register, she said....."in the State box, spell out the country's name"

Perdsonally I'm not sure if it will be useful for Canucks but heck, you never know.....

Jackie

[morningstar]

Jackie,

I am not sure anything with help that is put before us COPDer's but to get anything we have to put forth a effort on most of this stuff they offer. I look at it the way you say in you last quote "heck, you never know..... no we sure don't. I went to the site and signed up. I talked with Chip at CI he feels this will help. He does much for COPD so I will give it a try.
WHAT CAN IT HURT??

[Deleted]

I printed out the COPD Foundation Registry pages and taking it to my pulmonologist when I see him tomorrow. Who Knows? Maybe he will be in favor of this and pass it on to other patients.