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Post by stargazer on May 31, 2009 19:48:13 GMT -5
It has been quite awhile since I last posted....
We have now been in Toronto for 6 months and I have to tell you some days I don't think I can do it, then I pick myself up and keep going. I can breath, so many others can't, everyday I watch people that I have grown close to stuggle in the treadmill room working so hard to have a chance at a new life. Is this trip worth it? Oh my yes yes a thousand times over.
Hubby got out of hospital this week and while he is weak its great to have him home. He now has to work to regain what strength he has lost, thankfully he has not lost his drive or spirit.
Yesterday we had a another call to come in for a transplant. We arrived at the hospital at 1PM and they came and told us it was a no go at 1AM. It was a long day and of course disappointing but we got thru it. We had a young couple (she has CF and is here for her 2nd transplant from NB) and another support person from NS wait with us right up until the end. What great people!
So while we continue to wait we went up and cleaned an apt upstairs in preperation for a new couple arriving tomorrow from Nova Scotia.
Another couple arrived in the building a few weeks ago also from NS, the lady is a COPD patient, I haven't met them yet because of hubby being ill but maybe tomorrow at treadmill!!
As I get ready for bed, I am thinking of you all here and wishing you the best and saying a prayer for you all.
K
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Post by toni on May 31, 2009 20:58:26 GMT -5
Another disappointment for you both yet don't give up hope. Those lungs were not the ones meant for Lionel.
Hugs to you both.
Toni
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Post by Blossom/Jackie W. on Jun 2, 2009 7:09:11 GMT -5
Ahhhhhhh Kathy; it must have been a bit disappointing; especially after being there "on hold" for 12 hours. But I like how you approached it in your attitude and what you wrote. Lionel is very fortunate to have you as his support person. Good for you!
Toni's right; the lungs just weren't meant for him. His turn will come then we can ALL rejoice!
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Post by wendyco on Jun 2, 2009 16:16:32 GMT -5
I can't begin to understand how frustrating this must be for all of you. my gosh you are so strong and dealing with all of this with such grace and patience....bless both of you and I sure hope this happens soon with a possitive outcome.........
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