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Post by Blossom/Jackie W. on Jul 11, 2009 8:51:27 GMT -5
I want you to know Kathy that we are praying,  and/or sending positive thoughts for you and Lionel. I'm so pleased he got the transplant and I can only imagine how draining this Post Tx time is for all of you. The Home Team is rooting for him!    |
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Post by susanny on Jul 11, 2009 9:45:45 GMT -5
Kathy, have sent a prayer up for Lionel's swift recovery, and you to have the strength and endurance you need. God bless you both.
Sue
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Post by Deleted on Jul 11, 2009 9:50:59 GMT -5
We're all here with you Kathy, knowing that Lionel will show that lion heart.
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Post by bobbioh on Jul 11, 2009 11:49:38 GMT -5
I hope and pray all is going well, We are all behind you 100% Hang in there. I cant wait for a update its so exciting. Bobbi
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Post by wendyco on Jul 11, 2009 11:58:42 GMT -5
just saw this, didn't know it had happened....Oh I am so happy for both of you and will pray for no commplications!!!!!!
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Post by the bear on Jul 11, 2009 12:15:09 GMT -5
All the best wishes and prayers we can find are being sent through cyberspace just for you both.
Very gentle bear hugz to you Lionel and Kathy. You are truly an inspiration.
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Post by stargazer on Jul 11, 2009 20:28:44 GMT -5
Thank you all for your prayers. Lionel came thru surgery well. Although we had hoped for him to have the vent removed by now it just hasn't happened for him. He is alert alot of the time and writing us notes. His new lungs are exchanging gases very well and there is no sign of infection (as they had originally thought). The drs have told us he is doing well and to expect some setbacks and also reminded us that each patient is different and recover at their own rate.
The nurses in the ICU are amazing, what special people they are!! Once things settle down i will update again.
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Post by Blossom/Jackie W. on Jul 12, 2009 6:57:25 GMT -5
What GREAT news Kathy! WooooHoooo!!!!!
Thank you for letting us know!
We'll keep you and Lionel right here close to our hearts and in our prayers.
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Post by virginia on Jul 12, 2009 10:16:06 GMT -5
Kathy that is so wonderful...will keep you and Lionel in my thoughts and prayers...  |
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Post by Colleen-Pa on Jul 12, 2009 16:03:00 GMT -5
Glad to hear he is doing well, sending lots of prayers your way. Here is a link for an awesome transplant forum, the woman who runs it is fantastic and there are a lot of great people there if you need any help or just some support from people who have been through it. www.transplantbuddies.com/ |
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Post by Deleted on Jul 12, 2009 16:21:49 GMT -5
Kathy, I am so happy, I am so grateful that Lionel is doing well, how are you doing? I hope your taking care of your self too. This is a true Miracle to me, I wish you and your husband many many blessings, and that he recovers without any set backs, and most Importantly that he breathes easy forever, and you both share many sunsets, sun rises and rainbows together! ( Hugs) Love, Linndie  |
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Post by aero63 on Jul 13, 2009 8:51:48 GMT -5
So glad to hear things went well. I hope Lionel continues to recover steadily. Thoughts are with you and family.
Antoinette
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Post by stargazer on Jul 13, 2009 14:38:04 GMT -5
Just a quick update, Lionel has had a few rough days. He has had to have a some blood transfusions, and is still on the ventilator. He is pretty much unresponsive most of the time. I did get him to shake his head when i asked him if he was awake. The dr's think that he just needs more rest b4 they attempt to remove him from the ventilator.
Good news is his lungs are working!
Thank you all for your thoughts and prayers.
Kathy
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Post by Blossom/Jackie W. on Jul 13, 2009 20:22:22 GMT -5
Kathy; God love ya for checking in!
I figured Lionel was having some bumps in the road. You gotta remember though with what's he's been through and that with some of the meds he's on...... I think the intent might be to keep him a bit "low Key" for a bit shall we say.
Heck; you're right there! I don't need to tell you!
But; it's also important that YOU try to stay as rested as you can and look after yourself. You and Lionel have been a team through all of this...... The other portion of your Team is right here (after your immediate friends and family) and we're rooting for you both!
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Post by susanny on Jul 13, 2009 23:17:42 GMT -5
With all the angels praying here in the forum, and the ones that God has sent down, you and Lionel will be alright. It's a difficult time, and I hope you are getting some rest, food, and sleep. God be with you both.
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Post by shelley on Jul 14, 2009 8:11:43 GMT -5
thoughts are most definately with both you and Lionel. we're always told the 1st year is real bumpy, so i'm praying that it's all uphill for both of you now and you'll soon be out together enjoying the sunshine and warm air. blessings.
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Post by toni on Jul 14, 2009 9:37:13 GMT -5
Keeping you both in my thoughts and prayers Kathy. Make sure you get your rest to keep your strength up.
Toni
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Post by aero63 on Jul 14, 2009 9:47:25 GMT -5
My thoughts are still with you both. Thanks forthe update. Keep yourself well also.
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Post by Deleted on Jul 14, 2009 9:53:41 GMT -5
With all the prayers, and good thoughts and love for you Kathy and Lionel, I hope it gives you strength.
I am still in Awe of both of you being so strong. I wish there were words that could wipe all the worry from your heart. With a wife like you by his side, he will be okay!
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Post by stargazer on Jul 15, 2009 22:35:28 GMT -5
We still continue to have a few Bumps!! Lionel has been on the vent for 8 days now and the decision was made today that because of the risk of infection to remove him and to a trac instead. He has been pretty much unresponsive the last few days and when he was awake he was attacking his vent (and anything else he could reach) . The trac was put, unfortunately they had some issues with bleeding and have actually put him to sleep for the next 12 hours to give the would a chance to clot properly, which means he is on full ventilator support again. Not the best day but I have faith that tomorrow will be a better day.
Thanks so much for all your thougts and prayers they do bring much comfort.
Kathy
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Post by Blossom/Jackie W. on Jul 16, 2009 7:30:35 GMT -5
Kathy; for as much as I'm sure they prepared you and Lionel for this, I can only imagine how difficult it must be right now. There's just some things a person can't be prepared for and lady you are showing extreme strength at a very stressful time. I think you might find that he'll settle down a bit with the tracheostomy intubation rather than the oral. Some people just don't take to it. I know I didn't; kept trying, like Lionel, to pull it out plus knawing on it with my teeth. As for the bleeding; he's undoubtedly on blood thinners which adds to the slow clotting. Let's hope that today is a BETTER one for the both of you! We'll keep you in our hearts and prayers. We'll keep the candle lit and Sarah  will stay there with you both for as long as she's needed. |
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Post by bobbioh on Jul 16, 2009 7:48:44 GMT -5
Hang in there you guys are in our thoughts and prayers. If you feel alone just look over your shoulder we all are right there with you. ((((HUGS)))). Bobbi
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Post by shelley on Jul 16, 2009 7:52:48 GMT -5
Kathy, thinking and praying for both of you. As I have an cousin who is an RT on the transplant floor at TGH, I know that the vent can be one of the biggest hurtles to jump. Keep the faith and make sure you take good care of yourself. Hopefully the road will become easier shortly.
Hugz
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Post by aero63 on Jul 16, 2009 9:18:19 GMT -5
I hope today things go better. You are being so strong. Keep the faith and our prayers and thoughts continue to be with you.
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Post by susanny on Jul 16, 2009 9:38:04 GMT -5
Another prayer just made it's way upstairs. I can only imagine what you are feeling right now. As Jackie said, you can be prepared, but when you are in the throes of the momen it has to be so disconcerting. Keep the faith and know he is being watched over. I'm looking at the clock and seeing that he will be waking soon. I hope it will be better this time.
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Post by deltagirl on Jul 16, 2009 15:15:43 GMT -5
I am sending positive thoughts and goodwill to you both as you make your way through this most difficult part of your journey. Stay strong and take care of yourself as well as Lionel dear girl. Time is the great healer of the flesh and the soul.
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