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Post by kygal on Oct 27, 2007 21:59:32 GMT -5
Hi Gang, Long time gone here...had some major adjustments over the summer and into the fall but thought I'd poke my head in here and say  . Doug got out of rehab the end of Aug. and has been home since but he's still losing weight and I don't seem much progress with him. They're checking his thyroid again, his levels are on the rise again and they think the iodine treatment maybe didn't work...we'll know more next month. I've had a HUGE adjustment to being the full-time caregiver and do-all since he came home. I was hoping there had been some activity on the "caregiver" section but I see I was the last to post on there. I'm desperate for some type of caregiver group but there doesn't seem to be one anywhere. With all I have on my plate right now, I can't see myself starting something because I need the support myself right now...not doing the giving. Looks like there are major changes going on around here. I know I'll never get caught up with all the new posts but glad to see most of you are still around. I'll try and pop in here and there and see what's going on. Hugs, Mary |
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Post by cheryl on Oct 28, 2007 13:31:07 GMT -5
Mary, It looks like you've had alot on your plate lately. I certainly hope the doctors find out what's what with your Doug and he starts to improve. Anytime you need to pop in and talk, there is always someone here to listen. Take care and keep us posted on your situation.  |
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Post by Blossom/Jackie W. on Oct 28, 2007 14:03:25 GMT -5
It's good to see you Mary....you're not being ignored right now by any stretch of the imagination. Please bear with us. We lost one of our own today....
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Post by bobbioh on Oct 28, 2007 15:16:17 GMT -5
I have COPD myself but I was active in caring for my Mother before she passed away for over 10 yrs. So maybe I can be of support to you. If you need someone to lend you a ear or help you figure out a problem I would be more then happy to try to help you out. Feel free to Pm me or Email me its on my profile anytime. And Im sure there are many more people here who have knowlage to share also. Good luck bobbioh
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Post by cocojax on Oct 28, 2007 18:56:04 GMT -5
Hi Kygal, sorry to hear what you are going through with your husband right now. Do you have anyone coming in at all to help?? I know when I was laid up with a blood clot, I had a nurse coming in to check up on me and give me my injections.. Please do not feel that you are alone, we are great listeners on this site, and I am sure we could offer you some kind of help...just pop in whenever you can....
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Post by kygal on Oct 28, 2007 23:31:06 GMT -5
Thanks everyone for the kind support you've offered. I don't have anyone coming in to help out and we have no family in this area. All my family is in Kentucky and Florida and Doug's are in Orangeville, Barrie & Collingwood. But, we do have a wonderful church family that have offered a lot of support and prayers.
I'll do my best to be around more and will definitely bend some ears.
Hugs,
Mary
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Post by stargazer on Oct 29, 2007 12:27:26 GMT -5
Mary I too am a caregiver, you are not alone! I have found that since we started (and i say we because i go evey session) rehab I have met other caregivers and they gave been wonderful. Since i found this forum it has also been a great help because I didn't know much about COPD or know anyone who was dealing with it, many days i felt so alone but even tho i don't post much i always check in.
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Post by kygal on Oct 30, 2007 11:32:42 GMT -5
Hi stargazer,
Glad to meet another caregiver and especially knowing that you feel so much like I do. Doug attended rehab in-hospital because he wasn't strong enough to travel back and forth every day so I didn't get to attend many sessions. I've checked with the rehab unit and their social worker to see if there were any other caregivers who'd expressed an interest in wanting a support group and there doesn't seem to be any. I agree with you about the forums...they're great teachers and allow us all to get to know the difficulties of each day. But, to be honest, some days I feel quite shallow complaining about needing something when there are so many on these boards who are struggling daily just to breathe, just like my hubby. But, it is great to see someone else here who understands the daily things that go on with caregiving...and I also know that we're not all in the same boat...just like so many others on here.
Hugs,
Mary
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Post by LindaNY on Oct 30, 2007 15:57:25 GMT -5
(((hugs)))) Mary and welcome back.
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Post by Joyce7 on Oct 30, 2007 16:35:25 GMT -5
Hi Mary--I'm glad you are here and posting. Please keep us updated on not only your husband's condition but also, you and your condition. I am not a caregiver but it would take a lot of work and patience to fill that position....Joyce in SC  |
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. Doug got out of rehab the end of Aug. and has been home since but he's still losing weight and I don't seem much progress with him. They're checking his thyroid again, his levels are on the rise again and they think the iodine treatment maybe didn't work...we'll know more next month.
