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Post by Blossom/Jackie W. on Dec 17, 2010 17:06:50 GMT -5
I didn't quite know how to phrase this for a heading ....
As some of you know, Mark Mangus who so graciously answers your questions on our main website, is facing a current personal/family struggle with/for his daughter Kim.
I asked for his O.K. today to post/request your prayers.
Many of you know Mark and his qualifications. Many of you also know of his daughter's battles ... and successes!
Kim; (Mark and Kay's daughter) has CF. She's had 2 lung transpalnts. She (Kim) went for her 3rd year post transpant check up and there's major concern that she's in rejection.
Next week is her broncho and more.....
Now; I won't profess to know or understand all the details (technically) of the testing etc that she'll undergo but what I do know is that this lady has gone through a lot and STILL managed to get through RT school. (following her Dad's vocation maybe as well?)
Anyway Mark's wife has been in St Louis during this; they (Mark and his wife) plan on switcing.... he's travelling there as of Monday....
So........
He gives a LOT to the COPD community; and it would be nice if, at this time, he could feel that his family is getting it back ten fold.... It's part of what we do isn't it? Support......
This is a family "totally" commited in so many ways....
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Post by gwenwigley on Dec 17, 2010 17:43:34 GMT -5
Mark, Our thoughts and prayers are with you and your family as you go through this difficult time. I am sure all our "family" here will be with you in spirit. Take Care Chris and Gwen   |
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Post by Deleted on Dec 17, 2010 17:58:49 GMT -5
Mark, Keeping your lovely daughter and your family in my thoughts and prayers, May Angles fold their wings around you all and surround you all in coimfort and postive engery. ((((((((((((((Love Linndie)))))))))))))))))))  |
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Post by John on Dec 17, 2010 18:08:34 GMT -5
Mark; My prayers are with you & your wife & daughter.This one calls for a lot of Special influence the Candles are lit !  |
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Post by aero63 on Dec 17, 2010 21:39:22 GMT -5
My thoughts go out to you and your family in this very trying and emotional time.
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Post by susanny on Dec 17, 2010 23:57:43 GMT -5
 Uploaded with ImageShack.usMark, candles are lit in prayer for your daughter, Kim. She has been through so much yet still is valiant and strong. We need more people like her in this world. I pray that she will be healed and be able to continue to spread her gifts to everyone. I also pray for you, your wife, and your family in that you receive comfort in the knowledge that Kim is being watched over and cared for, and peace as you go through this trying time. |
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Post by sandy07 on Dec 18, 2010 8:11:53 GMT -5
Sending a healing white light to surround your daughter. Prayers going out that everything will turn out okay.
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Post by rvtoni on Dec 18, 2010 13:36:29 GMT -5
My prayers are joined with all the others. God bless you and your family
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Post by shelley on Dec 18, 2010 18:24:09 GMT -5
Mark, it seems only yesterday that I was saying prayers for Kim as she was waiting for her 2nd set of lungs and through the miracle of a donor , she came through, fought her way back and used her kick ass determination to heal, go back to school and graduate. When I read this post my heart sank but I remember how many times you've told me to be positive and keep on fighting and so, at this time, I am using that positive energy to pray for Kim and your family; to hold you all in my thoughts and hope that all will be well.
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Post by mary57 on Dec 18, 2010 19:26:08 GMT -5
Mark, you help us so much with your knowledge, your daughter sounds like a real champion. My prayers are with you all at this time.
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Post by Deleted on Dec 20, 2010 15:47:55 GMT -5
Mark to you and you wife the best of results with your remarkable daughter, Kim.
If we do indeed 'get back what we give' Kim will beat this stage too.
Regards and, if possible, Happy Holidays.
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Post by Bill W on Dec 20, 2010 17:52:35 GMT -5
We hope that our candles and prayers may be of some comfort at a trying time
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Post by susanny on Dec 20, 2010 22:02:47 GMT -5
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Post by Blossom/Jackie W. on Dec 30, 2010 12:40:28 GMT -5
Just to quickly update e'one...... I received an e from Mark today and part of it was as follows.......
"We received a 'partial' report on the pathology exam of Kim's bronchial tissue samples obtained during her bronchoscopy, indeed, the most important piece of news. Thankfully, (and as I fully expected) she is NOT in acute rejection. And, when they went back and looked at all of her FEV-1's for the tests preceeding that which in August, showed an FEV1 of 86%, they surmised that since most all previous ones were in the 60's, she may have had no significant change after all. The question remains: What about the August test that measured 86 %? Was it a fluke? Was it an erroneous measurement? That, we may never answer. They are still analyzing the tissues for signs of chronic rejection......"
Thank you everyone for your kind, healing thoughts and prayers.
What a way to go into the New Year!
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Post by bobbioh on Dec 30, 2010 15:14:37 GMT -5
oh thats wonderful news i will continue to keep them in my prayers. bobbi
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Post by susanny on Dec 30, 2010 22:01:37 GMT -5
Terrific! That's the kind of news we all love to hear. Hopefully, the path will continue along this way.
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Post by aero63 on Dec 30, 2010 22:08:28 GMT -5
What a wonderful update! Hoping all continues to turn out well.
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Post by John on Dec 31, 2010 7:09:00 GMT -5
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Post by Blossom/Jackie W. on Dec 31, 2010 12:27:56 GMT -5
Hate to throw a monkey wrench.... I really do.... but I got a note from Mark re: his daughter Kim. The test results might have been premature..... they're going to be starting a number of meds etc......
Anyway; I think what I'll do at this point, is invite Mark to share but only if he wants or can. So; for now; I'll leave it at that....
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Post by mary57 on Dec 31, 2010 12:56:57 GMT -5
Still going to keep her in my prayers. Hope all turns out well for her and her family.
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Post by aero63 on Dec 31, 2010 21:10:16 GMT -5
Still sending thoughts of better outcomes.
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