filcab

[filcab]

Hi Everyone,

My name is Phil and I am a 58 year old male, living in Lower Sackville Nova Scotia. I have a wonderful wife of 33 years, Pat, 2 grown daughters, Shawna and Sheri and a grown son, Phil. I also have an 80 pound lap-dog named Copper. Right now my FEV1 is at 10% and my DLCO is at 19%. I still expect to be around for a while yet, obviously, as I started this forum. My life pretty well revolves around the TV and the computer, but I am happy here in my own little world!

Phil

[bobbioh]

Hi Im Bobbi from Ohio,Glad to be here Phil,And your fourth registered member .I am a mother of three daughters.Beverly is 21 and married to Adam.Cassondra is 20,Rachael just turned 18 and is a Senior in high school.Im married 17 yrs to Don.I was Dx ed in October.Im 28% FV1,,Due to get my first SSD check in April. I live in the heart of Amish country in Ohio.Life is pretty laid back just trying to enjoy.bobbioh

[Dee]

Hi Phil.

I think your new forum is just great ! I am sure it will benefit so many fellow copders. Your knowledge has helped me many times
and I will be forever grateful.

Good luck and God bless,
Dee

[Deleted]

Hi All

My name is Betty and I live in Las Vegas, NV. I have three grown daughters and one 18 year old granddaughter. I have been married for almost 50 years. My husband and I are both retired and are on SS.

I was officially dx with copd Sept 2004 but I know I have had it for alot longer than that. Just wouldn't go to dr to get it checked out until after I retired from work and got on SS and medicare.

My fev1 is below 20% now. Was a little higher until I had a nodual removed from the middle lobe of right lung in Dec.

Thank you Phil for starting this forum. I have enjoyed reading the many posts you have done on how to breath and how to breath and eat at the same time.

[Vic]

Hi All -- My name is Vic and I live on Long Island, NY...I was Dx'd with COPD in 1997. I'm 72 years old and I'm married to Rita for the last 53 years. I was 24% when dx'd, stopped smoking immediately that same day...1 year later I was 33%.

In June of 2002, I started using Spiriva, which I obtained from the Netherlands with a script from my PCP(bless him). With 8 months of Spiriva usage, my fev1 climbed to 44% and I was able to discontinue O2 (needed it for sleeping only)...I was lucky in that Spiriva worked for me on the very first puff and the difference over Atrovent was unreal. Spiriva was my big benefactor. This June I will have COPD 10 years and I am now at 34% fev1...not bad after 10 years and 24% at the start.

[cheryl]

Hi Everyone --- My name is Cheryl. I live in Toronto, Ontario. I'm married with 2 grown children, Lisa and Jeffrey. I was diagnosed with bullous emphysema when my lung collapsed in May 2005. A second collapse in September '06 resulted in a lobectomy. The thorasic surgeon cut a few wedges out of my lung and roughed my lung up so it would stay up. I don't know what my stats are, even though I've been through all the tests. I really hate the stairs - - A Canadian COPD site - I'm tickled pink. Thanks Phil

[wendyco]

everyone and good luck with this site Phil.....good to see old and new faces here....

I live in Colorado, raised 5 kids(divorced) have 8 grandkids and one mutt that loves his "pack" dearly........
I have had copd since (dx anyway) 1997 and now have an fev1 about 20%....sure liked it better when it was 30 something

[Deleted]

Hi everyone. I am Debbie from Western Ky and I am 53 years young. I was dx with COPD in 1999, but didn't have any real problems until 2002. I have been on disability since that time. My FEV1 is at 22% and I am on 02 most of the time.
I am divorced, have three children ages 34, 32, and 19 and 10 grandchildren. It is good to meet new people. Phil, I will add my thanks to others for starting this forum.

[John]

Hi Everone: Glad to be on board! Thanks Phil !I'm 58 live in the Berkshires in western ma with my wife & bechion named "Doodle" .His brother named "spencer" passed a year ago now. Boy time does fly . I was dx in 06 of 2006 with fev1 38% post meds. Promtly quit smoking almost 11 mos now .Who would have ever thought I could go that long ! Not me LOL I'm on your basic meds of Sprivia advair & albretrol I'm looking forwad to a heathy fellowship with this new forum. Thanks again to you all .

[morningstar]

Phil and All,

I am Rosemarie aka Morningstar and I live in Northern West Virginia. I have COPD don't know the numbers. But, as of now am doing much better than a year ago. I am married to Tom or Tomcat as you will see from time to time. I have 5 beautiful spoiled dogs and 1 spoiled black cat. Nice to see some of you and glad to meet you new ones.

Wishing this forum all the best.

Morningstar - Rosemarie

[Deleted]

Hi Phil,
I'm Debbi from Oklahoma City, OK. I was diagnosed in July '03. I'm 55 and am owned by 5 beautiful kitties. I want to thank you Phil for opening this forum for us!

[straw]

hi all
i'm Darlene from ohio 43 years old i was diagnosed in june of 2005 . on o2 24-7
two kids married 22 years. getting ready for my first grandchild. thanks phil for a new forum to enjoy.

[Blossom/Jackie W.]

Looks like we got "off track" with 2 threads going . No biggie; the more the merrier..just copy and paste.

Hi I'm Blossom....aka Jackie NS, or vise versa

I have severe COPD...not on oxygen yet and I'm a firm believer and promoter of EXERCISE. I live in Nova Scotia; have 2 kids & 4 grandkids all living in Georigia. Also have a GREAT BH (Dave) and a walking partner (dog)...Buddy.

On World COPD Day Nov/06 I started Canada's 1st dedicated COPD website www.copdcanada.ca offering HOPE, INFORMATION & SUPPORT to the newly diagnosed. Phil was/is a BIG contributor to some of the info for those of us suffering with COPD.

[Deleted]

Hi, I am Wendy from Saskatchewan. Diagnosed three years ago, quit smoking three years
ago, 59% fev1, no real symptoms except mentally. Hard disease to come to terms with and
even harder to stay smoke free, which I have.
I am married with two grown children, work full time plus and enjoy reading and watching
tons of tv and movies.

[Deleted]

Hi,everyone.....I am maryk,have had lung issues most of my life. Started with TB at age 3(my father died of it when Iwas 2,)then Pleurisy,whooping cough,TB again.....and on and on.

My FEV1s 0.68 liters, 42% predicted.

I live in New York on Long Island with my daughter and her family,am reasonably happy here,but would rather live on my own. Looking a 'gift horse' in the mouth I guess---.

[morningstar]

Maryk,

Nice to meet you. I am Rosemarie from West Virginia. I have COPD & CHF. Don't know my number only that I have went from liters of o2 down to 2 1/2 since I started exercising. Which I do everyday. I am a firm believer that has saved my life. I breathe better. And feel better. I now look forward to the next day. Yes I have lung problems as we all do but I TRY to make myself feel positive about my life. I do still get very depressed but I keep telling myself I am to blessed to be stressed. Hope you really enjoy posting here. There are a lot of good people. Just ask if you have any questions. Our Blossom and Phil are smart and can help you with a lot of things. And I am learning There are many smart people on this forum. So jump in and join us as we learn to live with Lung Disease.

[ronwtor]

hi phil. my name is ron from toronto. ontario .have c.o.p.d. you and jackie have done well with c.o.p.d. canAda. keep up the good work.

[cheryl]

Hi Ron,

I'm Cheryl, also from Toronto. (Scarborough) I have bullous emphysema. Had surgery on my lung in September. Married with 2 children - both grown. One still lives at home. Ya just can't get rid of them anymore -

Welcome - I look forward to your imput. Please join us in "Over the Back Fence" and let us know how your day is going.

!

[filcab]

Hi Ron and Welcome,

If you have any questions at all about COPD, please ask away.

Phil

[cocojax]

Hi my name is Ellen and I live just outside Toronto, Ontario. I am with a wonderful man now for 10 years, I have two grown daughters, two great son-in-laws and 3 adorable Grandsons, and a great Cat named Spot. I am now on Canada Disability Pension as I was diagnosed with severe Copd last year. I have about 29% lung function ( I am not sure if that is what fev1 is). I am not on oxygen, I have completed the Breatheworks Clinic and was going to maintenance program. I had a cat scan the end of March and my specialist says I am a good candidate for either the balloons or LVRS. I have been waiting since April 9 to get an appointment booked in Toronto for an assessment..

[John]

Welcome to our online family Maybe we will see you @ over the fence in the am or anytime is ok

[cheryl]

Welcome cocojax

I'm located in Scarborough. It sounds like you have a wonderful family at home. That's great - lots of support. I have Emphysema and had parts of my lung cut out. I hope you get your appointment soon. Shouldn't they have called you already?
I hope you find some support here. Welcome

[cocojax]

cheryl said:

Welcome cocojax

I'm located in Scarborough. It sounds like you have a wonderful family at home. That's great - lots of support. I have Emphysema and had parts of my lung cut out. I hope you get your appointment soon. Shouldn't they have called you already?
I hope you find some support here. Welcome

When I phoned the receptionist at my respirologist's office two weeks after she was to fax the papers to Toronto, she advised me that my chart was still on her desk and that as soon as she heard something she would let me know, that it would take quite a while.
This is just to book an appointment, who knows how long it will take to get an appointment. I am feeling a little frustrated...

[cheryl]

Cocojax

I can see how you would be frustrated. I don't understand why just making the appointment would take this long. The receptionist at the specialists office must have an appointment book she uses. If you know the name of the specialist, would it be possible for you to call them directly?

[cocojax]

cheryl said:

Cocojax

I can see how you would be frustrated. I don't understand why just making the appointment would take this long. The receptionist at the specialists office must have an appointment book she uses. If you know the name of the specialist, would it be possible for you to call them directly?

I don't know if it is at Toronto General or what, so I guess I should have asked more questions.

[cheryl]

Maybe your General Practitioner could help them move it along a little quicker.

[Blossom/Jackie W.]

Hi Coco....I've posted briefly in the General Section; tomorrow I hope to move your comments into the COPD area becasue you brought up a few things that I think are very worthy of discussing.....

Be well and welcome!

[Deleted]

Hi,

My name is LINNDIE, I live in Florida, I am 56, married and have 4 gorgeous granddaughters, twins ages 18 months, on 12 years old and on 9. I am on O2 24/7, have had lung cancer had my right lung removed in 1984, I have E, Asthma among other health Issues. My husband and I are married 38 years, he is my best friend.

Love Linndie