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Post by Blossom/Jackie W. on Mar 10, 2008 6:01:40 GMT -5
I've copied and moved this here so that it doesn't get lost with previous postings postings.
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Thank you all for the thoughts and prayers. Joe ended up in ER this AM and they are keeping him to find out why there is some bleeding that apparently shouldn't be happening. They said if they sent him home, then they couldn't get to him quick enough.
If this all is what makes people strong, we should be considered rocks soon but by today's reactions we are both very far from that.
All is quiet tonight and no real reports yet. CTScan didn't show anything and may do bronchoscope yet. Other problems too. He didn't get into a room until tonight.
The first 3/4 of this day were downers for me, Joe and several other family members. Keep praying. Thank you all.
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Post by Blossom/Jackie W. on Mar 10, 2008 6:17:04 GMT -5
Mary; It sounds like you and Joe are having a really rough go of things right now and I wish there was something I could do to help ease the burden for you both.
You mentioned in a message that your son may be back to help. This is good for both you and your son; I know he wants to do whatever he can. He needs to be included. Don't be uncomfortable about asking for help if/when you need it from those you love. You can't carry it all or do it all yourself.
Know that you and Joe are in my daily thoughts and nightly prayers and we'll be here for you.
Post if and when you can or when you have the need to. You're not alone, nor is Joe.
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Post by bobbioh on Mar 10, 2008 7:15:10 GMT -5
Mary and Joe I continue to keep you in my thoughts and prayers. Bobbi
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Post by LindaNY on Mar 10, 2008 8:28:02 GMT -5
Mary and Joe, My heart goes out to you and Joe. Please keep us posted. We are all very concerned  |
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Post by cheryl on Mar 10, 2008 10:37:22 GMT -5
Mary,
I'm keeping you and your Joe in my prayers.
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Post by cocojax on Mar 10, 2008 11:40:26 GMT -5
Mary I wish I could take away the hard time you and Joe are having, please know that I am thinking positive thoughts for you both...
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Post by Joyce7 on Mar 10, 2008 14:21:32 GMT -5
Thinking of you and Joe each day with love and prayers..Joyce
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Post by Deleted on Mar 10, 2008 15:52:27 GMT -5
Mary, I have been following your's and Joe's saga for several weeks now and was so hoping that it was going to turn out o.k. with no problems. It's so hard on us folks that are sick ourselves to do what we want to do for our loved ones, be it children, grandchildren, spouses or parents.
Like Jackie said, let your family and friends know that you need help. They all need, and I am sure want to be involved and it will make Joe feel much better knowing that you are getting the help and support that you need and will be one less worry off his mind.
Prayers and best wishes to you and your family.
Hugs and Love
Bettynv
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Post by maryaz on Mar 12, 2008 1:25:43 GMT -5
Thank you all so much for the thoughts and prayers everyone. It means a lot.
The bleeding that they were so concerned about we are told is from the tumor itself. The Scan showed that it is shrinking and something about getting like a cavity and causing the bleeding and that is a 'good' thing. Don't know much more but that news was very good. He had several things to get under control and just hope it stays that way now.
Joe just came home later today. They didn't want to stop the radiation treatments since it was working and they took him there Mon and Tues. This seems really tricky trying to keep everything regulated and tolerable. He had really got pretty sick.
Our youngest son came down from Utah and arrived last night just in time to visit Joe for hour. That was a really good thing. I think he is staying for at least the week and can help get us in better shape maybe, in trying to understand all this. The kitchen is looking like we could open a pharmacy. Joe can worry less about me. Joe & I worry about our son and his job though. He says it is cleared. Hopefully.
Betty; The really hard part is not being able to do what we might to help if we were in better health. That adds to the stress and emotions. I think maybe you & I have some similar family that sometimes does more harm than good to the situation too.
Thanks for caring and for the thoughts and prayers. They do really help.
I guess on this road you never know what to expect. No one probably knows that better than Jackie. Jackie I was hoping it would be as smooth as possible for something like this. Maybe the next 3 weeks will be better.
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Post by Blossom/Jackie W. on Mar 12, 2008 7:12:14 GMT -5
Dear Mary;
Thank you for taking the time to stop in and update us. I know how strenuous this can be and sometimes it's difficult to "apply" one's self, like typing the latest info; as you are.
I'm glad your son has arrived and though I know you're concerned about his job situation, and not to be flippant about this Mary; but there's many jobs; only ONE SET of parents. I'm glad you're pleased he came.
(BTW; re: pharmaceuticals in the kitchen); fortunately you don't have to worry about small children accidentally getting into the meds. There's a positive here. And so what if they take up the kitchen; no big deal.
Dave had typed up a schedule etc for mine and he put himself in charge of it. Seems like every two - four hours I was taking several pills for something (until he got me weaned off.) Joe's not being weaned but You might want to do that; a typed schedule and one person in charge. Just a thought.
Let's talk bleeding. I hadn't mentioned this except to a few people. I have been almost daily since I got home. The surgeon didn't seem too stressed about it a month ago when I went to him (mind you he also told me mine was a complicated case and no surgeon would touch me right now; even to give an injection) I got the impression it wasn't totally unexpected. Only one night was it bad enough that we considered the ER. I guess what I'm saying is that I think with cancer, and cancer treatments or surgery, whatever it may be, there's gonna be surprises. It can be downright scary though can't it?
You also have some GREAT news! Joe's radiation treatments appears to be working! Mary; that's wonderful! And as you say let's hope things stay tolerable and regulated for him......and you for that matter. You both need some smooth sailing for awhile.
Try to relax a bit now that your son is there to help carry the load. Get some rest and touch base with us when you're up to it.....
Be assured you and Joe will remian in our thoughts and prayers.
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Post by cocojax on Mar 12, 2008 15:08:42 GMT -5
That is really good news Mary, will continue to think positive thoughts for you and Joe..take care of yourself. Not to worry about your Son he needs to be there with you and Joe right now...how nice is that that he came to support you both....
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Post by Joyce7 on Mar 12, 2008 15:35:49 GMT -5
Mary, This is very good news and I'm so glad to hear it. Just take it one day at a time. You and Joe are in my prayers daily..Joyce
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Post by maryaz on Mar 13, 2008 0:41:46 GMT -5
Thank you again for the thoughts and prayers. It means a lot. Today was a much better day. Joe went to his radiation this AM and actually was up and about. Had some nice visiting time. It is not easy but it is sure better than a few days ago. The stress and anxiety will always be there I am sure but for now a lot has been brought under control over the last few days in the hospital.
Jackie; Thanks for your input. Sometimes, no matter what, I cannot type. Other times it is okay. It is good Don has come. I understand what you mean about the job. Yet it has taken so long for Don's life to really get settled and working better and then this. It will work out though.
With kids we are extremely careful with meds. Actually I was also referring to the cupboards as they are kept in the kitchen. Lately I lost track and they are all over the counter too. We are going over all of this tomorrow. Don wants to know all he can learn while here too. I will see what all he is taking and may do the schedule. I didn't think it was that many but the list is long.
To reply to your bleeding comment: "It can be downright scary though can't it?" Oh Yes!!! It was so very scary. It will be a long time before I forget that time he was told to go to ER.
Next week will start the last 3 weeks of this scheduled 6 weeks and would be nice if it would go smoother. Then I think we might handle it. He did miss Monday's Chemo.
Thank you all again.
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Post by Blossom/Jackie W. on Mar 13, 2008 6:17:58 GMT -5
Mary; just wanted to let you know that you're sounding so much better. Sounds like Joe's doing better as well. And as for your son; Good for him wanting to learn and be involved! He'll now feel more a part of things and contributing. That's important when someone you love is really ill. They need to feel you're helping in some way.
Here's hoping the waters stay calmer and less eventful for you both these next few weeks....
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Post by virginia on Mar 13, 2008 12:46:43 GMT -5
Mary, I'm like Jackie, it's great that your son is there and wants to learn all about it and also will take a lot of burden off the 2 of you ...
Love and Hugs...virginia
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Post by maryaz on Mar 14, 2008 23:11:17 GMT -5
Thanks to you. Don will be here thru at least Tuesday. He will have to go home soon then. I am not even sure how he worked this out with his job, but not for me to ask now. When Don goes he wants to have a list of 'our' doctors and 'our' meds. If he has to talk to anyone on the phone he will feel better informed. That was quite a list I made up for Joe. Not done mine yet but it is just an updated list and easy. So far I have one Dr and Joe has several.  I really wanted to say that now 3 weeks are done and 3 to go. These 3 were like 3 months. We are hoping the next 3 go smoother. Don went with Joe to his checkup today with the Oncologists which we only saw one time. Joe & Don did confirm that they like the Doctor. It was hard to tell the first time when I went. Answered questions and Don asked if okay for him to call and talk with the Dr if he feels a need to once he goes back to Utah. Dr agreed it was fine. Things are smoothing some. Joe is up and doing things but not for long and resting again. Someone misunderstood and thought he needed someone to stay with him. Not yet. |
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Post by LindaNY on Mar 15, 2008 10:57:01 GMT -5
Mary, thanks for the continued updates.
You are a strong woman, but don't be afraid to ask for help from your family and friends. I'm sure they will be happy to help.
Here is hoping the next three weeks go faster. (((hugs))), thoughts and prayers.
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