introduction - Yvette

[yvette]

,
My name is Yvette and I was diagnosed with severe chronic pulmonary cystitis (Bird Keeper's Lung) I am on full time oxygen since June 2010, but remain fairly active. My husband and I run a
rescue/rehabilitation foster group home for dogs in Northern BC. I am working hard at losing weight while on fairly high doses of prednisone (trying a very low calorie diet with mostly vegetable but all food groups) and living with long tubing while moving around the house ie dogs getting caught up in it etc. Any ideas on how to hook up 25 feet so I can move from side to side and back and forth. The concentrator is stationary in a window to allow fresh air as the house is pretty much closed in otherwise for winter. I use a backpack and portable bottle for outside and traveling - my air bud works really well - lots of freedom but impractical for all day use indoors.. take care, Yvette

[sandy07]

Hi Yvette. Welcome to the group. I only move around with oxygen when I vacuum. Otherwise I just sleep with it. So, I don't know a lot. I think you should have a swivel for sure tho. People have hints on how to wear it on your face as well....and for sleeping. I use softhose and I can lay on it without it hurting so much.

I'm going to have to let the others give you more information. Some may have gone to bed already but I'm sure they'll be around tomorrow.

[Blossom/Jackie W.]

Welcome Yvette;

Nice to meet you though I wish it was under different circumstances.

I have to admit that although I've heard of Bird Keeper's Lung, I don't think I've ever met someone with it nor do I know much about it. I'll have to read up on it.

First; welcome! It's nice to have you join us. This is a great place to get to know others with lung disease, get support, encouragement and information or just pop in for a coffee and tell us how your day is going.

I'd say feel free to jump right in at anytime but you're way ahead of me! You already have. That's GREAT!

Incidentally, I moved your post out of yesterdays in "over the Fence" into the COPD section so that others would see it better. So; between your post here and in there, you should get some feedback....

Anyway; my name is Jackie (aka Blossom) and I look forward to getting to know you better!

[rvtoni]

Welcome, Yvette. Hope you like it here, the people are wonderful and so helpful.

I use 3 7foot sections of tubing, with swivels connecting them. It does so much to keep from having a big bundle of tubing on the floor to trip over. When I had 25 feet, I was forever having to take it off and de-tangle.

[John]

[justbill]

Welcome to the neighborhood Yvette. I was reading without
being signed in when I spotted your post. The hoses that come
from the oxygen suppliers always remind me of those stretched
out rolls of barbed wire in the war movies. Ready to trap anything
or anyone that moves.

One of the best moves I've made since becoming oxygen dependent
is to buy a wonderful soft hose. It lies flat an the floor at all times.
No unsightly coils to trip over or become entangled in.

You can get full information here. softhose.com/

Before you buy go to here www.copdcanada.ca/ There is a discount
for COPD Canada members.

Good luck, Bill

[susanny]

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Hi Yvette, nice to meet you. I have a question for YOU! What do you mean when you say your concentrator is stationary in a window to allow fresh air? Mine is a floor model that just sits in a room bringing the air. Does yours bring in air from outdoors? I didn't know they had that type available, and wouldn't the air be cold during the winter, humid during the summer? And what about the wet weather? I might just be terribly naive, but don't know these things. Thanks. As for the tubing, I don't use 24 hrs yet, either, but will probably someday.

Bill, thanks for the information and link. I've bookmarked it for future reference.
Sue