SueNy in Rehab

[corinne]

Mom's still in pain with her back and just sounds so exhausted. She's not able to sleep more than an hour or two at a time because of the way they have her pain medication scheduled. She's sleeping in a recliner since the bed just aggravates her back too much.

The social worker said they might send her home this Friday and she's alittle happy but alittle nervous about that. We're not sure if that's the doctor's decision or the insurance company saying her time is up because the antibiotics will be done by then.

She's worried that this will be her new normal and she will continue to have a hard time breathing and moving around. I hope that's not the case and this infection just needs time to disappear and allow her time to heal.

Thanks for all the kind words. And thank you John for lighting those candles.

[mary57]

Corinne, thanks for the update. I hope that Sandy did not have too much of an impact where you live. Here it was winds and rain damage, nothing compared to some of the reports I have been following from the States.

Sue, I am so very sorry to hear that you are still in such pain from your back. I hope that you will still be allowed to stay in the rehab. section so that you can continue to strengthen those muscles. I pray the this is not your 'new' normal, I am sure that things will slowly improve with time. Do keep your spirits up, and find a few 'easy' reads to pass the time with. How about scrabble?? Big Huggggs, Luv ya hun.

[Blossom/Jackie W.]

Hi Corrine;

I was on the site here while I was calling your Mom (I wanted to check on her, Mert and your family after the storm) All is well. Anyway; Sue's thereapist was there so I told her I'd call her later. She did say she had some news. Then when I saw you on here, I thought I'll wait and see /read your post.

First off; I'm very pleased to hear e'one's O.K. That's a big relief all! And; thank you for checking in with us and updating! We appreciate it; we really do.

I think I'm still gonna give her a call later and chew the fat.... hopefully there was no damage to their house or anything. Nasty, nasty storm....

[bobbioh]

hang in there sue will be a slow go getting built back up give it time

[hugahusky]

Sue you do need time to heal. I was not anxious to go home from the hospital as you know I live alone. As for your sleeping arrangement in a recliner, believe it or not but I have been home a month and still cannot lie down in bed to sleep without waking with pain from my incision or from where the tube was in my chest. The doctor said yesterday that this is normal and will heal eventually. I do find that at home I for longer periods of time and take lots of naps.

Glad to hear that you are feeling better.

Love, Susan

[Deborah]

Corinne, thank you so much for the update. I am sorry to hear your mom is in such pain; it must be hard for all those who love her.

Sue, it is great to hear that you might soon be home. I know you will receive excellent care there, assuming you have time to sleep between all the well wishers. The messages from others about taking it slow are well taken, although I suspect that this will be very trying on your patience. Don't be too discouraged and don't give up hope! We are all rooting for you.

Deborah

[Blossom/Jackie W.]

Thursday November 1st

I spoke with Sue today. Well; things have been put on hold a bit....
They're not releasing her till Monday.

I'm sure there's many reasons but.... in reality I know, and Sue certainly knows better than any of us; and agrees with the decision; that her Dr is making a good call.

She finished her anti's today. Her Dr wants to find out how she ..responds/does w/o them now. To me that's a smart move .

Her breathing was noticeably different today when I was talking to her; even more so than what I observed when she was very ill. (Just from my perspective.)

Mind you she did have one of those attitude nurses from H earlier :-) from what she described. That can do a number on the best of us.

But; they had also turned down her oxygen as it turns out. She's been working it at 91 and 92.

Like I said; I've noticed the difference.

Anyway Miss Sunshine;

I know when you get home you've a LOT of reading to do! And.... we've all been keeping tabs on you and waiting for those 2 special words only you can give....

Meanwhile; know that we love you Sue......

[peter]

Thanks for the update Jackie. Why would turn her O2 down so she is low??

[bobbioh]

good luck se i know you gotta be me sick but please get beer before yu head that way.....hugs

[corinne]

I just got off the phone with my mom and she sounds so much better tonight. She remembered to use the morphine breathing treatment before getting ready for bed and it made a huge difference. The past few nights she's been exhausted this time of night but today she was in such good spirits.

In Occupational Therapy she got to play bowling with the Nintendo Wii and already has her sights set on buying one for herself when she gets out. She had a blast and it'll be great for her to continue that form of therapy on her own. Only a few days left in the hospital and if all goes right she'll be home by Monday, which is also her birthday!

[dorothy]

Hi Sue. Still sending prayer and positive wishes your way. Also praying for mert. he sounds like quite a guy. Your'r lucky to have him. I hope when you are released that all goes well for all of you. I think of you often and i just know everything will turn out well. I sleep in a recliner myself due to breathing difficulty. Take care Sue and remember how many people care and pray and light candles.

[Deborah]

Corinne - thank you very much for the positive report. I am a bit Nintendo Wii fan and still use it when I can't get outside much. I have to say it is just an amazing coincidence - I share a birthday with your Mom. November 5 - Guy Fawkes Day - right? We'll have to celebrate vicariously together. Maybe she can eat the cake I can't yet have.

Thank you again, and thank you Jackie for staying in touch with her.

Deborah

[Blossom/Jackie W.]

Thanks Corrine.

I've got a Ninetendo wii myself and if/when I think to use it, it's fun. I can't say I've used the bowling, but I have used many of the other games/activities. Dave's even done the golfing. It really is a full body movement type of therapy depending on the game. It's also good for aerobics, yoga ... a lot of things. She's gonna enjoy it and it's great thereapy; especially if you have mobility challenges.

If she does get one for home; when you go to to visit you guys can do team challenges! That'll be fun eh?

I think you can even play it remotely with family members/friends elsewhere.

Peter; you were asking about her oxygen. I can't say that I "know." I could guess at a couple of reasons but as for factual reasons; I'm not sure. I do know there was a considerable difference and I mentioned it to her. That's when she told me they turned it down.

Still waiting to hear two words Sue....... Then we'll all feel much better...

[mary57]

Thanks for the update, Sue, I'm glad to hear that youare starting to feel better and even Wii bowling no less. It will be fun for you and Mert to play with at home. Maybe a Birthday or Christmas gift?? Anyway I do hope your breathing is easier and your oxygen numbers go up. Take Care hun.

[Deleted]

It's still a go for Sue to go home tomorrow. Thanks again, everyone for your prayers and encouragement.

[peter]

Hi Ellen, I hope everything goes well. I am sure Sue is ready to go home. I will keep her in my prayers until we hear she is back home.

[John]

Hi Sue .I hope your doing well

[sandy07]

I know you'll be glad to be getting home Sue.

[aero63]

Sue thinking of you and waiting to hear if you are going home or are home.

[mary57]

Ellen thanks for the good news, I'm sure you are relieved to see this progress for Sue.
Sue, I hope you are feeling so much better now. Take your time to make the adjustment to being home. Rest, rest and more rest. The getting home and settling in will wipe you out so don't get upset about it. Luv ya hun big hugggs

[susanny]

Okay,, here's the two words you've all been waiting for: I'M HOME!!!!!!!! Yippee!!!! What a long day it's been and none of my equipment had been delivered yet so it was quite a challenge getting me up the stairs and into the house. Luckily the O2 hose reached outdoors onto the deck and I could sit and recover my breathing before going the rest of the way in, but I made it. They finally delivered some of the equipment and no wheelchairs or tools they'd ordered for me and turned out it wasn't even the same company we use! So the guy called the hospital and found out where the stuff was coming from and that got kinda straightened out. They have to come back tomorrow with a different wheelchair because of how short I am, . I just realized the cane they ordered isn't here.....guess I have to make another phone call. Well, I called and was told the insurance co won't pay for both a chair and a cane...... Oh well, canes aren't that expensive, just one more thing to purchase, right?

Deborah, how about that, us sharing a birthday. Always knew good people were born on that day. I had a nurse from Ireland when I first was in the hospital in paliative care and she told me about Guy Fawkes Day and how there's fire works in England on our birthday. I had never heard of it before. Hope you're having a great day. Why can't you have any birthday cake, btw? I won't be having any either....but Mert is roasting his favorite meal for our dinner, the pork roast. He bought a huge one so guess we'll be having it all week. Helps him out while he's getting used to the other things he has to learn.

Well, guess I'll start checking in on everything else on the forum. Wanted to thank each and every one of you for all your thoughtfulness and kindness....your prayers and well wishes. My sister and daughter can't say enough about how wonderful a family and friends we are to each other. You all mean the world to me and I just know you got me through this trying time. Thank you so much for the cards and well wishes. Every day the volunteers would bring in more and comment on the number of friends I had. Very special people you are, you know! I love you all!!!!!!

[bobbioh]

Sue, So very happy your home! Please try not to let it overwhealm you I know easier said then done. If your having alot of trouble getting around when your walking have Mert put some chairs around the house for you to stop and rest. Thats what I do. Sounds silly but beats sitting on the floor . Try to take it slow you still need lots of rest. We all will be thinking and praying for you. HUGGS

[Blossom/Jackie W.]

Sue....

You, dear lady, said the two magic words.....

"I'm Home" That's MORE than enough for now.....

[sask5]

Welcome Home! So glad to hear you are home. Just make sure you take it easy and don't try to do too much too soon! ;D

[sandy07]

Wonderful news. Get strong. Missed you.

[mary57]

Great News Sue, I''m so very happy for you. I like Bobbi's idea about chairs about the house for you to sit on, I had my dad use a chair like a walker, pushing it infront of him to help him walk.
Now, you rest and let yourself catch up with yourself. Don't try to do anything more than you have to, eg; eat, sleep, bathroom breaks. Missed you hun.